| Joined: Mar 2010 Posts: 5 "OCF Down Under" Member | OP "OCF Down Under" Member Joined: Mar 2010 Posts: 5 | My father has been diagnosed with squamous cell cancer of the mouth and has had nearly 3 weeks of Radiation. His mouth and throat are very ulcerated and sore and he has been told to gargle with oil of cloves by a friend. Has anyone heard of this? please
Archie T1 N0 M0 SCC of Soft Palate Moderately Differentiated Invasive SCC PET scan- FDG avid in Soft Palate Lession Rt only: 6and 1/2 weeks
No Chemo atm Diagnosed 10/02/10
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hello and welcome Archie's daughter. I am glad you have now posted and I know you will get a lot of good advise here. To help people here who may have had or are having the same issues you need to let them know as many details as you can. I have taken the liberty of adding some of the details from your PM. I am sure you will get some good advice and I can guide you throught the signature bit later. I have added some of the information you gave me below as it is very important to people trying to help you here... Gabe
"dad has a squamous cell cancer at the back of the roof of his mouth just at the side of his left tonsil.They say he will only need Radiation as it is localised but they are radiating the lymph glands in his neck just incase. So we have asked today about the staging etc."
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | One thing you will find during this process is that most of the people you know or have met in your daily life have never had radiation to the head and neck...however they will be quick to add their opinion on how to handle it.
Last I checked, Oil of Cloves mouthwash isn't standard in our treatment protocol, however I'd have your father talk to his "medical team" on how to handle the physical discomfort he's experiencing. This will probably cut down the chances of infection as well and probably his pain to boot.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Mar 2010 Posts: 5 Member | Member Joined: Mar 2010 Posts: 5 | hello everyone, I went threw radiation on my neck for for stage 1 on my larynx. i'd lay on that table up to a hour, so they could lined me up. It was so uncomable ,I hated that place. I finlly ask for zanx and what a differents it made.I sailed right threw it. Sorry about the spelling. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Beware of what well-meaning friends come up with. Of course ask the doc before doing anything. Welcome to OCF, you will find tons of info here and on the main pages. There is a search button on both. Feel free to ask any questions you may have, you will find many OCF members to guide you thru this.
Ask for magic mouthwash prescription to help ease the pain.
He can also rinse several times per day with a mix of 16oz water, tsp baking soda and tsp salt. If this burns then decrease or omit the salt.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Archie,
Your dad�s case sounds similar to mine (see my signature).
I had radiation only to the back top of the mouth (soft palet) I was early stage and my worst side effect was the ulcers. I would stick with the doctor recommended treatments. The baking soda & salt rinse that Christine mentioned is almost universal in our world.
I had a mild fentynol patch (25mg) with liquid hydracodone for breakthrough pain. My doctor offered to up those meds if I needed but I was able to get through at that level. Tell you dad not to be afraid to ask for whatever pain medications he needs. Those ulcers are very painful and his doctor should know that.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Yes Archie, you are getting the best advice. As for the olive oil , If I remember right, it's good on some foods or salad. Good luck to your dad.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | lol Jim we know olive oil is good in salads  but the question was re oil of cloves. The smell of this reminds me of the dentist I have used it for toothache many years ago. My mouth wash (Dentyl) comes in 2 �flavours�..one being oil of cloves. Below is a couple of comments from a quick google but it is best to check with the doctors. �A mixture of oil of cloves and tea tree oil 50/50 can help with the pain and infection caused by mouth ulcers. Apply a very small dab onto the ulcer� �Its great as a teething preparation or for mouth ulcers.�
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Mar 2010 Posts: 5 "OCF Down Under" Member | OP "OCF Down Under" Member Joined: Mar 2010 Posts: 5 | Cheers everyone, its great to be able to hear other comments.You want to do the right thing,and to know what others have gone through sure helps.Thank you
Archie T1 N0 M0 SCC of Soft Palate Moderately Differentiated Invasive SCC PET scan- FDG avid in Soft Palate Lession Rt only: 6and 1/2 weeks
No Chemo atm Diagnosed 10/02/10
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Gabe, I remember my mom giving her 8 BRATS that mixture for tooth aches. But it helped. Fels Naptha soap and sugar on boils too then wrapped. LOL Oh we had fun with the old time cures.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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