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| Joined: Jan 2009 Posts: 33 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jan 2009 Posts: 33 | Well, I'm three weeks post radiation treatment today and I'm doing great. Within the past few days my saliva (while somewhat lacking) has returned to an almost normal consistency and my mouth sores are almost completely vanished. I'm back to eating almost anything (although I can't taste any of it) and I really just feel great.
That being said, I had my checkup with my MO today. There is a good possibility she is going to recommend that I have more chemo (she wants to do a week more of research). I was given Cisplatin concurrently with my radiation treatments, but my MO is talking about adding 3 doses of TPF chemo starting within the next few weeks. Usually this is done before radiation, but it was urged in my case to begin radiation ASAP, so we did not have the chance to do it then. I cannot seem to find people who had TPF chemo AFTER radiation treatment and I'm just wondering if anyone out there has and what that outcome was like. My margins/scans have been clear since surgery and I'm feeling so good... it's hard for me to want to subject myself to chemo all over again, especially when it seems like the side effects of TPF are far worse than the Cisplatin alone.
Anyway, any advise or just hearing from anyone else with TPF after radiation would be much appreciated.
Thanks.
9.29.08: Dx @ 24 w/ T2 SCC, tongue 10.14.08: Partial gloss. & r. neck dissection. Margins/nodes all clear. No HPV. No rad. 10.06.09: Recurrence in l. lymphnode 11.16.09: L. neck dissection + lost nerve XII 12.28.09: 33xIMRT w/ concurrent 3xCisplatin (no PEG) 02.15.10: Done with treatment!
| | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Evidently there is some disagreement on the timing of the TPF induction. TPF is actually 5F-U, it shouldn't be quite as nasty as Cisplatin. It can also be administered in pill form. They are probably being more aggressive because of your recurrence. More info: http://www.asco.org/ascov2/Meetings..._view&confID=40&abstractID=30872
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Hi Jen- I'm so sorry. Well if you have to have it hopefully it will go by fast and you wont'feel too bad. Glad you are feeling so much better. Exciting!
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
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