Well, I'm three weeks post radiation treatment today and I'm doing great. Within the past few days my saliva (while somewhat lacking) has returned to an almost normal consistency and my mouth sores are almost completely vanished. I'm back to eating almost anything (although I can't taste any of it) and I really just feel great.
That being said, I had my checkup with my MO today. There is a good possibility she is going to recommend that I have more chemo (she wants to do a week more of research). I was given Cisplatin concurrently with my radiation treatments, but my MO is talking about adding 3 doses of TPF chemo starting within the next few weeks. Usually this is done before radiation, but it was urged in my case to begin radiation ASAP, so we did not have the chance to do it then. I cannot seem to find people who had TPF chemo AFTER radiation treatment and I'm just wondering if anyone out there has and what that outcome was like. My margins/scans have been clear since surgery and I'm feeling so good... it's hard for me to want to subject myself to chemo all over again, especially when it seems like the side effects of TPF are far worse than the Cisplatin alone.
Anyway, any advise or just hearing from anyone else with TPF after radiation would be much appreciated.
Thanks.