| Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | I just watched the interview with Roger Ebert. He and his wife are incredible people. I was however angry when Oprah said that his wife had REFUSED to let him die. Well, I did too but look what happened. It almost implies that if you try hard enough-the person will survive no matter what. I know I'm probably way too raw to have watched it but I knew you'd all understand.
Last edited by suemarie; 03-02-2010 02:23 PM. Reason: spelling
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Gald i didn't watch it or hear her make such a crass theatrical statement.Why do people have to be so bloody melodramatic when they are facing the media.I attempted to refuse to allow my husband to die,but he did any way.I refuse to accept that he's gone but he has.We just don't have that power ,but wouldn't the world be a different place if we did.
Last edited by Cookey; 03-02-2010 03:10 PM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Sue and Liz
We do understand. My wife and I were equally shocked when Oprah made that comment and Chaz agreed with her. Putting the best light possible on it, perhaps Roger was reluctant to undergo the final surgeries he needed to survive and she pushed him to do so. Otherwise, Oprah should apologize to all the wonderful caregivers who lost a spouse. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | I'm not taking anything away from Chaz-she seems like a remarkable woman but Oprah was extremely insensitive to those who "let" our spouses die.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Oprah was insensitive in her comments. Roger has a lot of courage and I learned a lot from just watching him smile even with all he has been through. It made me realize that I can smile to. I can still talk, and am gaining my ability to eat again, slowly. I do agree Oprah should apologize.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Dec 2009 Posts: 108 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Dec 2009 Posts: 108 | I read the article about Roger and had seen the previews on TV with Oprah. I'm glad I didn't see her show, it would have pissed me off. There's one thing that bothers me though. Did anyone notice that Roger had "cancer" but did not specify what type? Why is that? Is it because anything having to do with the mouth, ie dental, is considered cosmetic and not a prerequisite for survival? If so, someone better rethink the logic.
I'm not thinking too clearly right now as they admitted Carol into the hospital yesterday after being in ER for almost 24 hrs. Unfortunately the Doctors finally listened to Carol's complaints only after going to ER. One Doctor told me let them do their job....well if they had been listening she might not have ended up in ER. According to the hospital's website they admit Oral Cancer is under researched in Florida....maybe I'll make copies of the article and present them to everyone we've dealt with so far...along with the OCF brochures. I'm getting off topic so I'll close my ramblings.
CG/Carol 57;SCC Stage IV L Tonsil T4N2bM0 12/2009 Recur 7/2010 - 2cm mass Invasive SCC L Floor Lower Jaw Surgery 8/10 - Trach,ND,p. mandibulectomy,pec flap ypT4aN0 HG Mucoepidermoid carcinoma 2nd Recur 1/18/11 - Tumor lower left lip Surgery 2/9/11 - Canceled - Inoperable 3/29/11 - Died
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | I was planning to watch the show, but spent most of the day in hospital with my friend who has mutiple myeloma.
I'm glad I didn't watch it as I can see why you guys are upset. Unfortunately, as we know, people just don't realize what they are saying. Wouldn't it be nice if we could just "refuse" to have something not happen and then it won't?
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I was too late and missed the Ebert interview. Sounds like I didnt miss much. Oprah is like most people who have no clue about living thru a terrible disease like OC weather its as the patient or caregiver. She is a puppet and says what is scripted to say.
Im sorry to hear that the show hurt the feelings of our caregivers. Suemarie, how heartless it must have sounded to you. You did everything in your power to help Neil. Her statement was made out of ignorance. Liz, glad you missed hearing those stupid comments. Both of you ladies were terrific caregivers, probably better than the wife who was on tv today. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I never liked Oprah and can't figure out why she has a show. I watched one time for about 15 minutes and quit wasting my time. I would rather watch grass grow than watch her.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | i have it taped and am debating on watching it. i probably will, just to see. im disheartened at the fact that it was upsetting to basically everyone that watched it. i just keep telling myself that anyone outside the OCF doesnt know or understand what we truly go thru. they have NO CLUE. so even though their comments may hurt us, they arent being cruel...they are ignorant about this subject.
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
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