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#11327 07-12-2007 08:50 AM
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Petey, you have been missed by all of your web-friends. Please check in. I know that you are having a tough time right now, but you know that we love and miss you. Let us hear from you. OK?

XO


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
#11328 07-12-2007 09:32 AM
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I second Colleen's post---cmon, I need to know you're still around and there's lots of us on here still need you---and need to know you're taking care of yourself!
Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#11329 07-12-2007 05:23 PM
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Hello Everyone

I needed a timeout. Thank You all for your concern and advice, which as usual was "spot on".

I have always felt that if you have half a brain, you can figure out most of your problems. You just have to use the other half of your brain, and be truthful with yourself.

I saw my MO Tuesday, and winced every time he touched me. He had "that look" if you know what I mean. He called Dr. Chemo, and told me to stay with next Monday's appointment for chemo and he gave me a RX for Oxycodone 40 mg without having to ask.

I woke up this morning (Thursday 7-12-07) with the left side of my face and entire neck extremely swollen. I looked like Alvin from the "The Chipmunks". I called the RO and told them I did not think it possible to put me in my mask.

I came in early to speak with RO's head nurse. After her examination and answering and explaining all questions, she felt I should be admitted to the hospital immediately and she went to get the RO.

After his examination, and a phone call to ???. He said since I was scheduled for Monday, stay with it (no insurance, I presume). He danced around the question of percentages (I know, I know) but I was dying to ask. (Pun intended)

He wrote a RX for steroids MethylPREDNISolone Tablets, USP (4 mg 21-pack). I took 6 tablets today all at once, 5 tomorrow, 4 the next day, etc.etc.

He also added more rads to my dosage.

They trimmed my mask and taped the 2 "boosters" that go over the new tumors to the outside of my mask. She said "that looks tight". I wanted to say "Ya think?" but I managed to "squeeze" out a smile.

I told the Rad tech my new nickname shall be "Sunshine".

Wishing you the best and praying for all. Sincerely, Petey smile

PS: When angry, count ten before you speak; if very angry, a hundred.


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
#11330 07-12-2007 07:25 PM
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Within 24 hours of starting the steroids robs face returned to normal Petey but a side affect of steroids is aggressive behaviour so take care if your mood alters darlin.

love liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#11331 07-13-2007 02:23 AM
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Petey (Sunshine), I am praying for you Buddy! Carol aka Crab Cakes


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#11332 07-13-2007 02:29 AM
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Yup, steriods can definitely mess with your mood. You may suddenly find you feel better and way more energetic but, as Cookey said, you may also find it harder to control your temper and find yourself irritated much more easily....so if that happens, take your own counting advice, Petey! I'm glad you got in to see the docs about all this finally.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#11333 07-13-2007 03:17 PM
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I will call you sunshine...but just so you know that is MY nickname..LOL... It is my name on my myspace !!! But you can use it now!! It is def a special name and you deserve it !!!


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#11334 07-13-2007 04:19 PM
Joined: May 2007
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Petey, please, hang in there. You are going to be successful in your endeavors....ALL! of em.


Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
#11335 07-14-2007 03:46 PM
Joined: Jun 2007
Posts: 510
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I am very worried about Petey, as I'm sure many of you are. He will not respond to my e-mails. If anyone knows how to get in touch with him otherwise, and has done so, kindly post a line to let those of us who are interested know that he is okay. Thank you!


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
#11336 07-15-2007 02:09 AM
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Posts: 2,019
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Petey just posted yesterday. He has been really outgoing and friendly up to now, but he has an awful lot on his plate and may be trying to get lots more done before the chemo starts. We've all been through this--maybe we could cut him a break in terms of expecting he will post here everyday and answer all our personal emails immediately while he's in treatment?


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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