Oral Cancer Foundation
Posted By: August Petey, please check in!! - 07-12-2007 03:50 PM
Petey, you have been missed by all of your web-friends. Please check in. I know that you are having a tough time right now, but you know that we love and miss you. Let us hear from you. OK?

XO
Posted By: brenfran25 Re: Petey, please check in!! - 07-12-2007 04:32 PM
I second Colleen's post---cmon, I need to know you're still around and there's lots of us on here still need you---and need to know you're taking care of yourself!
Brenda
Posted By: PeteyB Re: Petey, please check in!! - 07-13-2007 12:23 AM
Hello Everyone

I needed a timeout. Thank You all for your concern and advice, which as usual was "spot on".

I have always felt that if you have half a brain, you can figure out most of your problems. You just have to use the other half of your brain, and be truthful with yourself.

I saw my MO Tuesday, and winced every time he touched me. He had "that look" if you know what I mean. He called Dr. Chemo, and told me to stay with next Monday's appointment for chemo and he gave me a RX for Oxycodone 40 mg without having to ask.

I woke up this morning (Thursday 7-12-07) with the left side of my face and entire neck extremely swollen. I looked like Alvin from the "The Chipmunks". I called the RO and told them I did not think it possible to put me in my mask.

I came in early to speak with RO's head nurse. After her examination and answering and explaining all questions, she felt I should be admitted to the hospital immediately and she went to get the RO.

After his examination, and a phone call to ???. He said since I was scheduled for Monday, stay with it (no insurance, I presume). He danced around the question of percentages (I know, I know) but I was dying to ask. (Pun intended)

He wrote a RX for steroids MethylPREDNISolone Tablets, USP (4 mg 21-pack). I took 6 tablets today all at once, 5 tomorrow, 4 the next day, etc.etc.

He also added more rads to my dosage.

They trimmed my mask and taped the 2 "boosters" that go over the new tumors to the outside of my mask. She said "that looks tight". I wanted to say "Ya think?" but I managed to "squeeze" out a smile.

I told the Rad tech my new nickname shall be "Sunshine".

Wishing you the best and praying for all. Sincerely, Petey smile

PS: When angry, count ten before you speak; if very angry, a hundred.
Posted By: Cookey Re: Petey, please check in!! - 07-13-2007 02:25 AM
Within 24 hours of starting the steroids robs face returned to normal Petey but a side affect of steroids is aggressive behaviour so take care if your mood alters darlin.

love liz
Posted By: Carol L Re: Petey, please check in!! - 07-13-2007 09:23 AM
Petey (Sunshine), I am praying for you Buddy! Carol aka Crab Cakes
Posted By: Nelie Re: Petey, please check in!! - 07-13-2007 09:29 AM
Yup, steriods can definitely mess with your mood. You may suddenly find you feel better and way more energetic but, as Cookey said, you may also find it harder to control your temper and find yourself irritated much more easily....so if that happens, take your own counting advice, Petey! I'm glad you got in to see the docs about all this finally.

Nelie
Posted By: sharlee Re: Petey, please check in!! - 07-13-2007 10:17 PM
I will call you sunshine...but just so you know that is MY nickname..LOL... It is my name on my myspace !!! But you can use it now!! It is def a special name and you deserve it !!!
Posted By: Bailey4 Re: Petey, please check in!! - 07-13-2007 11:19 PM
Petey, please, hang in there. You are going to be successful in your endeavors....ALL! of em.
Posted By: emmylou1951 Re: Petey, please check in!! - 07-14-2007 10:46 PM
I am very worried about Petey, as I'm sure many of you are. He will not respond to my e-mails. If anyone knows how to get in touch with him otherwise, and has done so, kindly post a line to let those of us who are interested know that he is okay. Thank you!
Posted By: Nelie Re: Petey, please check in!! - 07-15-2007 09:09 AM
Petey just posted yesterday. He has been really outgoing and friendly up to now, but he has an awful lot on his plate and may be trying to get lots more done before the chemo starts. We've all been through this--maybe we could cut him a break in terms of expecting he will post here everyday and answer all our personal emails immediately while he's in treatment?
Posted By: brenfran25 Re: Petey, please check in!! - 07-15-2007 02:23 PM
You're right Nelie--he said he needed 'Time-Out'--but he did take the time to write an update on the 'General Board'---letting EVERYONE know!

If you read, but don't post Petey--no probs, we're all thinking of you anyway!!

Brenda
Posted By: Nelie Re: Petey, please check in!! - 07-23-2007 07:54 PM
OK, now it's my turn to be worried about Petey. I don't want to send a PM to him which he might feel obligated to answer when he is struggling with other stuff, which I'm sure he is. But has anyone else here heard from him and know how he's doing?

Nelie
Posted By: sharlee Re: Petey, please check in!! - 07-23-2007 08:49 PM
I havent ..but I have his number and I could try calling him ..I do remember hi saying he would be staying in the hopsital though ..so what do you guys think ? SHould I call ?
Posted By: Kevin - Memphis Re: Petey, please check in!! - 07-24-2007 12:27 PM
He just posted in the General area.
© Oral Cancer Support - Survivor / Patient Forum