| | Joined: Feb 2010 Posts: 28 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 28 | Hi All,
To cut a long story short I have had an MRI which showed a lump on the base of my tongue and then had a Radioactive Whole Body Iodine Scan because initially the doc thought I had a lingual thyroid but its not that.I now have to wait three weeks for a biopsy which seems like a long time to me?
Has anybody else had to wait that long and then been diagnosed with tongue cancer.I don't know if its a good thing because he musn't think it's too serious or would have done it straight away or a bad thing if it is cancer and it's more advanced.
Just wondered what everybodys thoughts are?
Thanks,
David.
Last edited by david t; 02-19-2010 11:30 AM.
Mri on pituitary - incidental mid line tongue lesion found
Referred to ENT surgeon
Suspects Lingual Thyroid sent for 123 iodine scan - said dont need surgery or biopsy.
Follow up:Not a lingual thyroid, now have to have a tongue biopsy on Monday 15th March 2010.
Get the results Monday 30th March 2010
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | That is a long time to wait. Anyway you can be the squeaky wheel and get it moved up?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | that is legalized torture and shouldnt be allowed IMO!
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Dec 2009 Posts: 108 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2009 Posts: 108 | I agree 3 weeks is too long. For your own peace of mind get the appointment moved up. OC can be very aggressive even in that short period of time.
CG/Carol 57;SCC Stage IV L Tonsil T4N2bM0 12/2009
Recur 7/2010 - 2cm mass Invasive SCC L Floor Lower Jaw
Surgery 8/10 - Trach,ND,p. mandibulectomy,pec flap
ypT4aN0 HG Mucoepidermoid carcinoma
2nd Recur 1/18/11 - Tumor lower left lip
Surgery 2/9/11 - Canceled - Inoperable
3/29/11 - Died
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I agree with the too long also. I usually have my results within a day and sometimes before I even leave the Hospital after the scan.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2010 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 28 | I rang the consultant's secretary today and she's going to have a word with him.
Mri on pituitary - incidental mid line tongue lesion found
Referred to ENT surgeon
Suspects Lingual Thyroid sent for 123 iodine scan - said dont need surgery or biopsy.
Follow up:Not a lingual thyroid, now have to have a tongue biopsy on Monday 15th March 2010.
Get the results Monday 30th March 2010
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | David you are in the uk and our friends here sometimes forget we cant just pick up the phone and speak to doctors and arrange appointments and choose who we see or when.You have done the right thing speaking to the consultants secretary,but also try your GP because they now have access to all the tests and stuff you have done at the hospital and can give you the results.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Feb 2010 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 28 | Hi Liz,
The care I have had on the NHS is as good and seems to be as quick so I'm not complaining really.I just feel so stressed at the moment with everything and keep forgetting things half the time like what day is it....etc...etc which im sure most people can relate to.
I spoke to the consultants secretary who was lovely so I think I'm just going to have to wait and try and be patient.I see my gp this week so might mention it to him to see if he can speed things up a bit.
Thanks for the message,
Best Wishes,
David.
Mri on pituitary - incidental mid line tongue lesion found
Referred to ENT surgeon
Suspects Lingual Thyroid sent for 123 iodine scan - said dont need surgery or biopsy.
Follow up:Not a lingual thyroid, now have to have a tongue biopsy on Monday 15th March 2010.
Get the results Monday 30th March 2010
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Thats great news David the poor old NHS sure gets a bad press but they were brilliant all the way through Robs treatment.The waiting times are definately the hardest though,rob just worked his way through it and it seemed to come round quite quickly.I found the hardest thing was the night before the appointment,but a few brandies helped lol.
Whereabouts in the UK are you?
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Feb 2010 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Feb 2010 Posts: 28 | Hi Liz,
I'm in Manchester. I don't mind waiting for my biopsy I'm just worried that if it is cancerous it will get worse??? The consultant did say he didn't think it was. I know a scan can't diagnose if it is but can they get an "indication that it might not be??
I do feel like I'm in good hands with the consultant that I'm seeing and am attending Christies Hospital in Manchester.One of my friends is a pathologist and he said if he had been worried he would have had you in straight away...no questions asked so thats reassured me a bit!!
Last edited by david t; 02-23-2010 03:15 PM.
Mri on pituitary - incidental mid line tongue lesion found
Referred to ENT surgeon
Suspects Lingual Thyroid sent for 123 iodine scan - said dont need surgery or biopsy.
Follow up:Not a lingual thyroid, now have to have a tongue biopsy on Monday 15th March 2010.
Get the results Monday 30th March 2010
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