| | Joined: Feb 2010 Posts: 5 Member | OP  Member
Joined: Feb 2010 Posts: 5 | What happens next? My husband, Rob is a 9 year survivor of several episodes of tongue cancer which were surgically removed with no other treatment. He has had 1/3 of his tongue removed. He is a 15 month survivor of stage 4 neck cancer after having a radical neck dissection and intensive radiation/chemotherapy tx. On tues. his dentist found 4 new spots in his mouth. 2 on the inside of his cheek(same side as previous cancer) 1 under his tongue and 1 spot on the other side of his tongue. It is his opinion as well as my husband's that they are all cancerous. We see the surgeon who has been following my husband since the neck surgery on monday. We have previously been told he could not receive radiation again. So, what are the options? Surgery to remove and then wait? Anyone have any advice
48 year old caregiver to husband Rob, Nonsmoker,nondrinker and a past survivor of recurrent head and neck cancer. 3/2007 DX T2 N2b MX stage 4 Squamous Cell Carcinoma of oral Cavity. Tx right side neck dissection, radiation and chemotherapy completed August 2007.
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Diane,
Others here have had radiation more than once. I think it's a factor of location. Sorry to hear you fight continues.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Diane,
I would seek out the nearest Comprehensive Cancer Care Center closest to you, I'm sure Davidcpa or the other smart people will post a link for you shortly (I always forget...chemo brain).
Get the absolute best possible medical advice available to you. I'm sorry you and your husband have to face this again.
Best wishes
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Hi There. If you aren't already I would get to a CCC because all the big ones are all in communication with one another on what the best treatments are for different cases... if you are in Illinois Universitt of Chicago is supposed to be really good. Wishing your husband a full recovery from this cancer.
KATE
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Diane,
So sorry to hear about your husband. My prayers are with you guys. Please keep us updated.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | diane,
sorry to hear that this battle just doesnt seem to end for yall. RUN to the nearest CCC. RUN FAST.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | All I can say is to echo the other posters and offer my prayers my best to you both.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2010 Posts: 6 Member | | Member
Joined: Feb 2010 Posts: 6 | Hi everyone, i will introduce myself and trust i am on the right track. I was diagnosed Dec. 09 with a tumor which is 1 cm to the right of the larynx with activity in the lymph node.January was a blur of tests, peg tube insertion, hearing test, teeth out, moulds for trays and the 1st clinic visit for the mould for the mask and ct scan. since then ... nothing... have a letter which states that the 2nd clinic visit will be 4 weeks from 26thJan 2010. am very anxious as it is only at the 2nd visit that i will be give a date for radiation therapy, plus 1 low dose of Cispatin per week to begin. i will have 7 weeks of treatment. I am 58 yrs old , a smoker all my adult life and am struggling on all fronts. i really find this site so helpful... | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Rose,
Sorry that you are going through this.
You should start your own thread in this forum and put your treatment and diagnosis information in the signature section of your profile. This will allow people to answer you directly and it will not get lost in someone else's thread.
You haven't mentioned if you ahve stopped smoking and I hope you have.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Hate to see you here but it's the best -place to be for good information and to make friends with people that have been and are going thru what you are. Good luck with everything and keep us informed as you go thru it/.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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