| | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Jan 2010 Posts: 142 | I have had some major changes in taste. Like I can not stand the taste of any cola's. They taste VERY strong almost painful.
Had a fried fish we have every now and then Friday night. All I can think of is how it tasted like dirt. Never will I be able to eat that again.
Is it due to the removal of the tissue they only removed about a half dollar size area just inside my lower lip? I don't remember ever having just anesthesia causing anything like this.
Saw the surgeon Thurday and he was suprised that I am off all pain meds, had returned to work and how well the area has healed.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Seda
Never say never. Taste changes are not only quite common but vary tremendously at various points of TX and recovery. Even though i cannot swallow, I can still not only taste, but my taste has improved tremendously from the original cardboard/dirt taste of everything. Just hang in there
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | After all of this time, the only time Ihave half a decent taste is the 1st bite, then it could be a cow patty and I wouldn''t know it unless it drew flies to my louth.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Seda,
If you haven't had any chemotherapy, which your signature doesn't indicate, it could be some of the meds you did take have affected your taste buds. Be patient, things will most likely return to 'normal' before long.
-Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Jan 2010 Posts: 142 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jan 2010 Posts: 142 | The bad news is that Chemo does not work on Mucoepidurmoid Carcinoma the good news is that since Chemo doesn't work I won't have to go through that. It is almost 4 weeks since surgery and my taste has already changed and I know that it will change again once the radiation starts. I suppose taste changes are the least of my concerns these days. It just seemed strange after just the surgery to have such significant changes.
55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
| | |
| Forums23 Topics18,252 Posts197,147 Members13,332 | | Most Online1,788
Jan 23rd, 2025 | | |
|
