| | Joined: Jan 2008 Posts: 29 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jan 2008 Posts: 29 | Although I am cured,I've been battling the long term affects many years now.I've NEVER met anyone in person that's had what I've had.Like they say,"misery loves company" and it's WONDERFUL to be on a chat board with several thousand people in the same boat.Thanks Brian for bringing this board and all of us together for support and info.Hope is SO VERY important for all of us.
32 Year Oral Cancer Survivor.CURED!!Right neck dissection.5000 rads plus radium needle implants in the tongue.Also had alternative treatment in Germany from Dr. Hans Neiper in 1982.The combination of ALL the treatments cured me.
| | | | | Joined: Jan 2010 Posts: 12 Member | | Member
Joined: Jan 2010 Posts: 12 | I am a new member and i just love this forum for all of us. I am interested in some of your stories about ongoing after effects
I am still having a lot also. I had my first cancer in 1997 and have had 2 more since. It has been hard on me and the radiation I had the first time, has left me with a lot of not so nice problems. I would love to talk to you online, please write me when you have time.
Jean Hamann
Salem, Or.
I started in 1997 with a swollen glad in my neck. It was stage 2 tonsil cancer. Had radiation and a week hosp. stay. 2 mo. tube in throat. Lost 40 lbs. c. free until 2005. Tongue had surgery. Did good. 2007, another tongue, surgery. Am cancer free now. Went to OHSU. they are wonderful.
| | | | | Joined: Jan 2010 Posts: 12 Member | | Member
Joined: Jan 2010 Posts: 12 | My email is in my profile if you want to contact me that way.
Last edited by Brian Hill; 02-08-2010 10:41 PM. Reason: delete email address from view
I started in 1997 with a swollen glad in my neck. It was stage 2 tonsil cancer. Had radiation and a week hosp. stay. 2 mo. tube in throat. Lost 40 lbs. c. free until 2005. Tongue had surgery. Did good. 2007, another tongue, surgery. Am cancer free now. Went to OHSU. they are wonderful.
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Jean,
Most of us here discuss all these issues right here on the site, no need for private emails. It helps others like Fogelburg fan who have never met another survivor.
We have a forum titled "after treatment issues" take a look and feel free in posting your questions and experiences.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | jeanie. please do not put private information like your email phone etc, on the boards - they are public. Robots wander the web collecting info like this. People who want your email just have to click your name and look at your profile which cannot be easily read by the spyder/robots. I am taking your email out of your post for you.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | fogelbergfan-i LOVE ur quote! welcome!
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Dec 2009 Posts: 63 "OCF Down Under" Supporting Member (50+ posts) | | "OCF Down Under" Supporting Member (50+ posts)
Joined: Dec 2009 Posts: 63 | agree with homershoney - best quote in a signature i've seen so far...
stage 2 scc in left oral tongue. 32 at dx
removed 21/12/09 plus left neck dissection and upper arm flap.
clear pathology 24/12/09
non-smoker
active footballer/surfer
social drinker
lives stress-free!
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Welcome Fogelbergfan (may I call you "Fogey"? lol) and just seeing that 27 year survivor means a lot. And as devoted as my dog is, I'd settle for being 1/4th the person he thinks I am.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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