#10973     06-15-2007 02:47 PM      |       Joined:  Feb 2007  Posts: 168    Gold Member (100+ posts)   |      OP      Gold Member (100+ posts)    Joined:  Feb 2007  Posts: 168  |    Hello everyone, I just got back from the local Relay for Life walk. I am continually amazed by the generosity of people. I am also amazed at the number of people who are affected by this disease. I know for each survivor, caregiver, and family there are probably 4 times as many that weren't there. It is great to see so many people together working for a common cause. It's like this forum. I enjoy being continually suprised that people still care about people enough to help and sacrifice for one another. Lee        
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed.  Good Health and Good Help to you. Lee
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#10974     06-15-2007 10:38 PM      |       Joined:  Apr 2005  Posts: 2,219    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Apr 2005  Posts: 2,219  |    Hi Lee,
  Was curious if there was anything at your Relay about Oral Cancer.  Other than when we did oral cancer screenings at ours last year, there never seems to be anything about OC.  One year, as we walked around the track, there were signs that mentioned many types of cancer, but not OC.
  Our Relay is next Sat. & Sun. up here.  Unfortunately that was a bad weekend for my office with 2 hygienists and two doctors being away.  I am one of them and I spearheaded the screenings.  So we won't be doing them this year.  We had a great booth setup last year with banners provided by Brian.  Plenty of handouts etc., but the weather was horrible.
  Hope you are doing and feeling well.
  Jerry        
Jerry
  Retired Dentist, 59 years old at diagnosis.  SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05.  Nodes all clear. No chemo no radiation 18 year survivor.
  "Whatever doesn't kill me, makes me stronger"
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#10975     06-16-2007 05:01 PM      |       Joined:  Jul 2006  Posts: 446    "OCF Canuck" Platinum Member (300+ posts)   |           "OCF Canuck" Platinum Member (300+ posts)    Joined:  Jul 2006  Posts: 446  |    I walked in one with my oral surgeon and his staff on June 1. My surgeon is also my cousin, and his staff put together a team because they had all become pretty familiar with my story.
  It was my first walk, and it was amazing. We were the oral cancer team of the relay, and I had taken a bunch of OCF brochures along.
  I am really pleased to say I did not bring a single one home, and I spent many hours talking to people about oral cancer. I know that I will be back next year. It's a very cool thing Wayne        
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#10976     06-18-2007 12:42 AM      |       Joined:  Feb 2007  Posts: 168    Gold Member (100+ posts)   |      OP      Gold Member (100+ posts)    Joined:  Feb 2007  Posts: 168  |    You know Jerry for the most part it seemed to be mostly breast cancer and probably prostate. I say this because I only noticed maybe two people with head and neck scars. There also was not much reference to it at any time. I hope to be more active with it next year and maybe bring in some awareness. Considering I live in KY I know we probably have more oral cases than what I seen. It was still a very humbling event.        
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed.  Good Health and Good Help to you. Lee
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#10977     06-18-2007 02:25 AM      |       Joined:  Sep 2006  Posts: 75    Senior Member (75+ posts)   |           Senior Member (75+ posts)    Joined:  Sep 2006  Posts: 75  |    The walk for life are great. Just the fact that you are there makes people aware of oral cancer. What is so alarming to me is the amount of people that have cancer. Thease walks bring us all together for the same cause, and its remarkable how much it helps all those that are affected. When I go back to my home town for the walk for life, and see how many of people I know have died or are being treated now, wonder whats in the water, why are there so many people getting Cancer?        
Tongue Cancer, stage 4, spread to neck/ Radical neck, 3 chemos, 33 radiation. 5-18-2005
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#10978     06-19-2007 03:42 AM      |       Joined:  May 2003  Posts: 102    Gold Member (100+ posts)   |           Gold Member (100+ posts)    Joined:  May 2003  Posts: 102  |    Our Uncle went to our local Relay for Life out in Riverhead, Long Island last Friday evening and unfortunately, he went alone because we had an all day family event to run for our marriage ministry the next day. He said there was no mention of Oral Cancer at ours.  We will go with him next year.  It sounded like a very nice thing to do.  He enjoyed being around people who had lost someone they love to cancer, and buying and lighting a candle for Aunt Ro brought him some peace- of sorts.  I think the "we are family" aspect of it is very nice.
  Lisa        
Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node.  AdenoC 1 sal gland.  Two add. reconstrc. surgeries for adhesions.  Recurrence 7/06- Sub-Mand AdenoC.  Mets to both lungs.  Lost her battle 5/4/07.
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#10979     06-19-2007 10:40 AM      |       Joined:  Jan 2004  Posts: 1,116    Patient Advocate (1000+ posts)   |           Patient Advocate (1000+ posts)    Joined:  Jan 2004  Posts: 1,116  |    Hi Lisa, I am so glad your Uncle went and was comforted a bit. I normally attend the dinner at our Local Relay for Life and walk the survivor's lap. One year someone there was selling ribbons and had certain colors for each type of cancer, oral cancer was one of them.....but that was about the only mention of oral cancer I saw. Love, Carol        
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11--- 
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#10980     06-19-2007 12:13 PM      |       Joined:  Jul 2006  Posts: 446    "OCF Canuck" Platinum Member (300+ posts)   |           "OCF Canuck" Platinum Member (300+ posts)    Joined:  Jul 2006  Posts: 446  |    I think you really have to make a point of talking about oral cancer at these sorts of events. When we did the Relay, our entire team focused on oral cancer (most team members work in my cousins dental office).
  We attracted quite a bit of attention. Many people hadn't even considered oral cancer, and certainly didn't view it as the killer that it is. I spent a lot of time that evening talking to people about my experience, and handing out brochures. We really have to be our own advocates in this fight. There are so many types of cancer that receive much more publicity and funding, we get a bit lost in the shuffle Wayne        
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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