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#10973 06-15-2007 03:47 PM
Joined: Feb 2007
Posts: 168
lee33 Offline OP
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Hello everyone, I just got back from the local Relay for Life walk. I am continually amazed by the generosity of people. I am also amazed at the number of people who are affected by this disease. I know for each survivor, caregiver, and family there are probably 4 times as many that weren't there. It is great to see so many people together working for a common cause. It's like this forum. I enjoy being continually suprised that people still care about people enough to help and sacrifice for one another. Lee


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
#10974 06-15-2007 11:38 PM
Joined: Apr 2005
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Hi Lee,

Was curious if there was anything at your Relay about Oral Cancer. Other than when we did oral cancer screenings at ours last year, there never seems to be anything about OC. One year, as we walked around the track, there were signs that mentioned many types of cancer, but not OC.

Our Relay is next Sat. & Sun. up here. Unfortunately that was a bad weekend for my office with 2 hygienists and two doctors being away. I am one of them and I spearheaded the screenings. So we won't be doing them this year. We had a great booth setup last year with banners provided by Brian. Plenty of handouts etc., but the weather was horrible.

Hope you are doing and feeling well.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
#10975 06-16-2007 06:01 PM
Joined: Jul 2006
Posts: 446
"OCF Canuck"
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I walked in one with my oral surgeon and his staff on June 1. My surgeon is also my cousin, and his staff put together a team because they had all become pretty familiar with my story.

It was my first walk, and it was amazing. We were the oral cancer team of the relay, and I had taken a bunch of OCF brochures along.

I am really pleased to say I did not bring a single one home, and I spent many hours talking to people about oral cancer. I know that I will be back next year. It's a very cool thing
Wayne


SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
#10976 06-18-2007 01:42 AM
Joined: Feb 2007
Posts: 168
lee33 Offline OP
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You know Jerry for the most part it seemed to be mostly breast cancer and probably prostate. I say this because I only noticed maybe two people with head and neck scars. There also was not much reference to it at any time. I hope to be more active with it next year and maybe bring in some awareness. Considering I live in KY I know we probably have more oral cases than what I seen. It was still a very humbling event.


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
#10977 06-18-2007 03:25 AM
Joined: Sep 2006
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The walk for life are great. Just the fact that you are there makes people aware of oral cancer.
What is so alarming to me is the amount of people that have cancer. Thease walks bring us all together for the same cause, and its remarkable how much it helps all those that are affected. When I go back to my home town for the walk for life, and see how many of people I know have died or are being treated now, wonder whats in the water, why are there so many people getting Cancer?


Tongue Cancer, stage 4, spread to neck/ Radical neck, 3 chemos, 33 radiation. 5-18-2005
#10978 06-19-2007 04:42 AM
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Our Uncle went to our local Relay for Life out in Riverhead, Long Island last Friday evening and unfortunately, he went alone because we had an all day family event to run for our marriage ministry the next day. He said there was no mention of Oral Cancer at ours. We will go with him next year. It sounded like a very nice thing to do. He enjoyed being around people who had lost someone they love to cancer, and buying and lighting a candle for Aunt Ro brought him some peace- of sorts. I think the "we are family" aspect of it is very nice.

Lisa


Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
#10979 06-19-2007 11:40 AM
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Hi Lisa, I am so glad your Uncle went and was comforted a bit. I normally attend the dinner at our Local Relay for Life and walk the survivor's lap. One year someone there was selling ribbons and had certain colors for each type of cancer, oral cancer was one of them.....but that was about the only mention of oral cancer I saw. Love, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#10980 06-19-2007 01:13 PM
Joined: Jul 2006
Posts: 446
"OCF Canuck"
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I think you really have to make a point of talking about oral cancer at these sorts of events. When we did the Relay, our entire team focused on oral cancer (most team members work in my cousins dental office).

We attracted quite a bit of attention. Many people hadn't even considered oral cancer, and certainly didn't view it as the killer that it is. I spent a lot of time that evening talking to people about my experience, and handing out brochures. We really have to be our own advocates in this fight. There are so many types of cancer that receive much more publicity and funding, we get a bit lost in the shuffle
Wayne


SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06

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