| | Joined: Apr 2008 Posts: 7 Member | OP  Member
Joined: Apr 2008 Posts: 7 | i have had pain from my left eye all the way to my neck for a week and just Sat I noticed red patches/leasions on back/sides of left side of tongue..have used (and quit...and restarted...and quit...)snuff and alcohol all my adult life (I am 45r old male) and am scared to death....I saw a Doc today and have CT and ENT scheduled but of course it will all be done over the holiday...any good forums/sites to help me get thru the week until the results are in...sadly I tend to focus on the negative and am looking for some positive energy. You all participating on this site are angels in my mind! | | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I will keep you in my prayers. You have come the right place for support. Maybe others will have some advice for you. It is okay to be scared.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Gmas....try to put yourself in "neutral," as hard as that might be. Be as busy as possible. Remind yourself that it's not cancer until the tests prove that it is.....And if it is, you can be guaranteed of advice and comfort here. And if it is NOT, you can be guaranteed of rejoicing from those here!! Either way, you have our prayers, and we hope that you'll report back when you get some results......and write anytime. We've all been there, and it's not a nice place to be!! XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Colleen said it best, it's not cancer until your medical professional says it is (she's so smart!). Relax, enjoy your holidays and put it the furthest from your mind until you get your results back. This is easier said then done but look at this time as a time to realize how fragile and short life is...so go do the things you want to do and love on the people you love.
1) Get off the tobacco products NOW
2) Stop drinking NOW
If it is cancer, it doesn't mean it's an automatic death sentence. Hell I went in with a tooth ache and came out with stage 4 cancer....almost 2 years later I'm still breathin, lovin on my wife and kids and have just started my own company.
Keep us updated and use all of the information this site provides. If you find that it is cancer do yourself a favor and seek the finest medical help out there to give you your best chance.
Good luck my friend and welcome to OCF
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I was also a Stage IV and I'm over 3 years past my treatment and am almost as great as I was before. lol
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | gmas, I would say you are in the site for continual conversation and advice,. Most of us will be checking in the Forums like anyother day. I check in the AM and then late in the evening. There is always something new that is helpful.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | gmas, I do have to add this. Go with the positive attitude and I would bet it will make life so much better and smoother. I hear every Sundy how great I look and that if I had teeth I would be another face in the croud, It helps me with this attitude and I just let it roll off of me to whoever is in need. I'm just an upbeat type of person and let it shine thru. Oh yes I have worried a couple of times, but my friends and family in the forums straightened me out within a day or so.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 |
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Best of luck with your upcoming tests. It can be agony waiting for test results. The only way to tell if its cancer would be a biopsy. What did the biopsy from last year show?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | christine said it, the wait for test results is very hard, the time drags. hopefully u can stay busy with the holiday and it will pass faster. keep ur chin up and i will be praying for u.
i would say try not to worry...but im gonna say stay positive and try not to worry too much.
teresa
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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