| | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I think my better days are over. It did not last long. I did get to go to a Christmas party last night and was able to eat some. I awoke this morning to horrible throat pain and head pain. UGH
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | It often seems like 1 step forward and 10 steps back but you will get there in the end. I hope your treatment goes as fast as Steve's did. Seemed like no time to get to half way and then from there it went really fast. We set up a calendar of the days and would mark them off after tx each day. Our first goal was half way and it was all coloured and big lettering so it was noticeable. Thinking of you Angelia.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Nov 2009 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2009 Posts: 33 | Angelia,
I hope that you have a great weekend (all things considered)! I also found (and still do find) myself thankful for the respite.
Joel
Age 49, HPV 16+ SCC, T1N2bM0, Stage IV R Tonsil, 2 nodes, nonsmoker, lite drinker, 100 mile/wk biker, workout, play hockey, Tx:10/26--12/15/09, IMRT x35 70Gy, no surgery, Cis 1st rnd til some tinnitus loss after day 2, carbo next 3 wks, Peg in 3rd wk;still ate some solids 6th wk. 2012/05 Still Clean
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Angelia...Just wanted to you know I'm still thinking about you. I've been sick as a dog and have been off for a couple of days.
Glad to hear you made it to a Christmas party...I hope you had fun. I always felt better when I was around other people. It made me remember there are other things going on in the world and that helped.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Angelia, I bet you were doing things at the party that your body isn't used to doing anymore. I hope witrhin a couple of days you are back to the happy lady that went to the party. Good Luck mam. Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | I have had a rough day, but I am doing okay. I skipped out on church this morning because I had family in town. I am now wishing i would have gone. I am going to get through this, and hopefully with flying colors.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | You will get through this!!! Time.... Keeping you in my thoughts and prayers. Take care.
Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
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