| Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Eric, hope the pain eases up for you soon!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | So you cut yourself shaving???
Sticking to that story huh?? lol
Doesn't look that bad to me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 396 | wow, the pic looks pretty painful to me. hoping ur pain eases soon.
Teresa ----------- CG to ANDY. Nasopharyngeal Carcinoma (NPC) T2N2cMxG4 stage 4. 43 @ dx 8/31/09 tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3 PORT 9/9/09, PEG 12/07/09 35 IMRT-1/wk carbo 11/30/09-2/3/10 tx stopped due to complications IMRT BOOST 3/08-3/12/10 PET 4/12/10 CLEAR! PEG out 4/14/10
| | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Hi eric funny isn't it how the graft sites actually seem to hurt mire than the main operation site.you sound as upbeat as can be expected so keep up the healing
love and hugs liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | Hang in there and hope all goes well, have has great a Christmas as you possibly can!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | David, I got a kick out of the shaving joke, but I got PM's asking me to really be careful shaving...some people have no sense of humor.
Liz, yea, the skin graft sites are the worst pain, inside my mouth and from the donor site...my face/neck and skull cuts are largely painless. I'm know it was the best decision to get off Fentanyl, even though I had this surgery on deck, but the oxy really isn't touching the skin graft pain. Yesterday I maxxed out on my tylenol and Oxy limits.....today has been better.
Thanks for all the well wishes everyone, been very helpful.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Eric,
I saw your picture. It looks wonderful!!!! The swelling doesnt look like its too bad. Hope you get a handle on the pain. My doc gave me Neurontin. It works for my jaw pain. Its given for seizures, but its great for nerve pain. I also take oxy for break thru pain and have the patch too. Ask your doc about it, the Neurontin might help you too. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Eric
Great Picture. Great attitude. You certainly have been through a lot. You look so young even with those scars. Thanks for being so considerate in posting the picture on profile so us Facebook resisters could still see it. I can't afford another internet addiction beside OCF & TripAdvisor or else I would never get anything done. Hope you can find some Holiday cheer (Northern Lights & Ice come to mind as seasonal favorites )in addition to the Oxy for your "chronic" pain . You beat the Fentanyl once before, so if needed, take it, you can beat it again. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Christine, thanks for the info on Neurontin, my dr and i discussed it prior to treatment as I do have nerve pain on the op side of my face. He says it would be more effective then the opiates. I looked at him like I wanted to slap him...I'd been telling him for monthes that I'd been feeling nerve pain and he's just now saying something? Dr's...what area ya going to do?
Charm, I was thinking about you when I posted the picture as my profile, knowing you were strictly against joining Facebook. My pain levels are evening out now and I think I can take it until Monday. I just hope they take this stupid gauze out of my mouth then, oy. As far as looking young, I've always had a baby face...a curse when I was younger, a blessing when I was older.
Thanks for all the well wishes
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Eric You the man. In defense of my Facebook antipathy, my son did ask that I not join, since I stuck him with my name, only adding the III and he does not use that on Facebook, plus if I was a member, perhaps I would "friend" him and as most people know, the last thing a 21 year old wants is to have his parent as a Facebook friend or have to deny them. Heck, Baby Face is quite appropriate for you, my friend. I looked ancient at 30 with a big bald spot and thinning hair. At 62, though, I look like I did in my 30s.  . Still, great picture, you have the style to carry it off as a macho man. You could be the poster boy for oral cancer. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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