| | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Well--it's been a little over a year since my tx has been completed and my thyroid has crapped out. I suppose a pill or so will take care of the problem. The nurse was telling me you're probably feeling this or that and taking this pill will make you feel better--I was like, " I feel normal, nothing out of the ordinary..."
It just feels so good not going through tx that even if I was sleeping my life away laying in a snow bank I would say, "I'm doing well, no problems from what I can see!!" Good thing for doctors and a few tests here and there..........
Last edited by Ray1971; 12-03-2009 03:29 PM.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 70 | Being sleepy and not being able to stay warm. Classic hypo-thyroid symptoms.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Funny Brian!!
Ray,
Yes they will prescribe a small pill that they want you to take daily. I have been taking Synthyroid (now the generic form as it's much cheaper) since about my 5th month post Tx as mine crapped out early. I was freezing (still am lol) in Fl when the outside temps were in the 80's and sweating at the same time and feeling tired.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | Ray, I too felt great other that I was freezing when the rest of the family was comfortable or I was running the air conditioner and they were bundled up trying to keep the icles away. Anyway, Thyroid meds have helped in resolving the problem - although it is taking awhile getting my thyroid numbers where the Dr wants them. I don't know if you are sporting a full head of hair - but a messed up thyroid can make your hair very unhappy and fall out.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | LOL...GREAT!
Cold and soon to be BALD!
Jerry: So, how was the date?
George: BALD JERRY!! SHE WAS BALD! BALD!
Jerry: Bald?
George: BALD!!!
Love that show........
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Ray
My bald spot expanded to cover my head in my late 20s. So as I aged, I never really felt older than 27 in terms of hair loss.
Still for purposes of accuracy, here is the actual script of the episode you alluded to
[quote]George: How so? I'll tell you how so. She's bald!
Elaine: What do you mean bald?
George: What do you think I mean bald? Bald. Bald bald.
Jerry: She's bald?
George: She's bald.
Elaine: Oh come on.
George: Oh come on? No come on. She took off her hat and there she was (waving his hand over his
head) hello. It was like I was looking at myself in the mirror.
Elaine: Well maybe she got a haircut or something.
George: Let me tell you something. No one walks into a beauty parlor and says "Give me the Larry Fine."
Jerry: Women go bald?
Elaine: Yeah, I've heard of that. I mean they usually wear a wig.
Kramer enters.
Jerry: Hey.
Kramer: Hey.
George: You fixed me up with a bald woman.
Kramer flinches.
Kramer: Bald?
George: Yeah, that's right.
Elaine: Do you see the irony here? You're rejecting somebody because they're bald.
George: So?
Elaine: (puts her hands up to her mouth) You're bald!
George: No I'm not. I *was* bald.
Elaine grabs at the toupee, George dodges the grab.
George: Elaine.
Elaine grabs again and misses. George turns around and opens the door trying to get out. Elaine grabs the
toupee and runs to the window.
George: No, no, no Elaine.
Elaine: (shouting) I don't like this thing. And here's what I'm doing with it.
She tosses the toupee out the window.
George: Nooooo.
He runs to the window, and the blind comes down on his head.
Outside.[/quote]
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | LOL...That was a great show!
Thanks for the script Charm!
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
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