#10804 05-28-2007 09:00 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | I recently read on the Princess Margaret Hospital's website in Toronto, Ontario Canada, that they have a new cancer drug that has been proven successful in killing cancer cells alone triggered by laser light. Clinical trials in patients are one to two years away. Carol... 
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#10805 06-05-2007 02:33 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2004 Posts: 218 | Hi Carol, I recently posted an article about this in the news section, about photodynamic theory. You can find it at: http://www.oralcancerfoundation.org/news/story.asp?newsId=1774 This type of therapy seems to be of great promise, in particular for patients with recurrence who have already been treated with radiation therapy. - Sheldon
Dx 1/29/04, SCC, T2N0M0 Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions) Dx 3/15/2016, SCC, pT1NX Tx 3/29/16 Surgery
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#10806 06-06-2007 06:10 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Does anyone know if this available anywhere in the US or only Britian and Canada? I might still have a voice box had I known about this 6 years ago.
Take caare, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#10807 06-06-2007 07:28 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | Great News!!! check out the website...the project was funded in part by National Institutes of Health (US) and the U.S Army...Should be available...Eileen.. Carol Ann...
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#10808 06-07-2007 03:00 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Brain, Gary,
What's the scoop here?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#10809 06-07-2007 08:30 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2007 Posts: 525 | Hello all. I hate to be "The Devil's Advocate" here, but could this be a monetary issue here? Could it be possible that there is not enough Money in a possible better TX than the more expensive and definitely more intrusive and debilitating customary practice? With all the rumors flying around out there that they have found the cure for cancer, but will not reveal it because of how much money would be lost it makes me wonder. This may seem like an absurd point of view, but I am a very cynical person. Also why is the military researching it. And the part about no funding for research raises an eyebrow as the military usually gets whatever it needs unless there is a war going on and the politicians are jockeying for a controlling position. Or could it just be me and I have gone completely mad? Or am I suffering from heatstroke in S. Fla.? Petey 
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method. ***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#10810 06-07-2007 09:02 AM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | Petey, just food for thought. Go to the website for Princess Margaret Hospital in Toronto and contact them. Ask the question. My husband was asked to participate in a clinical trial (concerning PET scan) prior to starting his treatment, but had to decline because his case was an emergency. We would have been excited to take part in it. I am excited about this drug. I am not sure about the funds to sponsor this project. I think anyone who has cancer should inquire. Keep us posted. Carol Ann
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#10811 06-08-2007 06:37 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Brian, Gary, What do you know about this photodynamic therapy? How effective is it? How soon do they know if it is working? Can it be done more than once? This just might save one member from a horrible surgery.
Thanks, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#10812 06-08-2007 03:26 PM | Joined: Apr 2007 Posts: 131 Gold Member (100+ posts) | OP Gold Member (100+ posts) Joined: Apr 2007 Posts: 131 | Eileen, I found some information on PDT. 1 877 275 7724 Roswell Park Cancer Institute Buffalo, New York. Re: Clinical Trials National Cancer Institute www.cancer.gov We need a cure for ourselves, our children. I'll keep you posted if I hear any more information on PDT. Carol Ann.
Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
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#10813 06-08-2007 06:44 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I have to be honest that I am just learning about it myself. What I do know is that it is currently being used "off label" at one institution and about 175 H&N patients have been treated with it. I think that is is too soon to look at the 5 year survival rate and comparisons with more conventional treatment (along with double blind studies) will have to be conducted to prove it's efficacy.
It is exciting to think of the prospect of another treatment modality that doesn't involve the old slash, burn and poison protocols.
I do wonder why more H&N patients are not showing up here who have been treated with PBT (Proton Beam Therapy).
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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