Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#10804 05-28-2007 09:00 AM
Joined: Apr 2007
Posts: 131
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Apr 2007
Posts: 131
I recently read on the Princess Margaret Hospital's website in Toronto, Ontario Canada, that they have a new cancer drug that has been proven successful in killing cancer cells alone triggered by laser light. Clinical trials in patients are one to two years away. Carol... laugh laugh


Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
Joined: Feb 2004
Posts: 218
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Feb 2004
Posts: 218
Hi Carol,
I recently posted an article about this in the news section, about photodynamic theory. You can find it at:
http://www.oralcancerfoundation.org/news/story.asp?newsId=1774

This type of therapy seems to be of great promise, in particular for patients with recurrence who have already been treated with radiation therapy. - Sheldon


Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Does anyone know if this available anywhere in the US or only Britian and Canada? I might still have a voice box had I known about this 6 years ago.

Take caare,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Apr 2007
Posts: 131
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Apr 2007
Posts: 131
Great News!!! check out the website...the project was funded in part by National Institutes of Health (US) and the U.S Army...Should be available...Eileen.. Carol Ann...


Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Brain, Gary,

What's the scoop here?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Mar 2007
Posts: 525
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Mar 2007
Posts: 525
Hello all.

I hate to be "The Devil's Advocate" here, but could this be a monetary issue here?

Could it be possible that there is not enough Money in a possible better TX than the more expensive and definitely more intrusive and debilitating customary practice?

With all the rumors flying around out there that they have found the cure for cancer, but will not reveal it because of how much money would be lost it makes me wonder.

This may seem like an absurd point of view, but I am a very cynical person.

Also why is the military researching it. And the part about no funding for research raises an eyebrow as the military usually gets whatever it needs unless there is a war going on and the politicians are jockeying for a controlling position.

Or could it just be me and I have gone completely mad? eek

Or am I suffering from heatstroke in S. Fla.? Petey confused


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
Joined: Apr 2007
Posts: 131
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Apr 2007
Posts: 131
Petey, just food for thought. Go to the website for Princess Margaret Hospital in Toronto and contact them. Ask the question. My husband was asked to participate in a clinical trial (concerning PET scan) prior to starting his treatment, but had to decline because his case was an emergency. We would have been excited to take part in it. I am excited about this drug. I am not sure about the funds to sponsor this project. I think anyone who has cancer should inquire. Keep us posted.
Carol Ann


Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Brian, Gary,
What do you know about this photodynamic therapy? How effective is it? How soon do they know if it is working? Can it be done more than once? This just might save one member from a horrible surgery.

Thanks,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Apr 2007
Posts: 131
Gold Member (100+ posts)
OP Offline
Gold Member (100+ posts)

Joined: Apr 2007
Posts: 131
Eileen, I found some information on PDT.
1 877 275 7724 Roswell Park Cancer Institute
Buffalo, New York. Re: Clinical Trials
National Cancer Institute www.cancer.gov
We need a cure for ourselves, our children. I'll keep you posted if I hear any more information on PDT. Carol Ann.


Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
I have to be honest that I am just learning about it myself. What I do know is that it is currently being used "off label" at one institution and about 175 H&N patients have been treated with it. I think that is is too soon to look at the 5 year survival rate and comparisons with more conventional treatment (along with double blind studies) will have to be conducted to prove it's efficacy.

It is exciting to think of the prospect of another treatment modality that doesn't involve the old slash, burn and poison protocols.

I do wonder why more H&N patients are not showing up here who have been treated with PBT (Proton Beam Therapy).


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Page 1 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5