| | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Megan posted this link on Facebook to a news article in the News Section of this site. I keep re-reading it and it says nothing about how the diagnosis was made and why there were no treatment options. What vital organs? I think he was misdiagnosed and did not have "mouth" cancer as they call it in the UK. http://oralcancernews.org/wp/terminal-cancer-patient-is-given-the-all-clear/
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Obviously it was the BEER THERAPY referred to in the article that cured him. I keep posting here that the one and only advantage of having a PEG with oral cancer is that you can SAFELY with no fear of damaging your mouth's cells, DRINK ALCOHOL This formal OCF post just proves it.  Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | As a postscript to my prior post. Let me clear up a common misperception that Ben Franklin said that Beer is the proof that God love us. Here is the actual writing of Ben Franklin
[quote]For the record, here, in a letter addressed to Andr� Morellet in 1779, is what Benjamin Franklin actually did say:
Behold the rain which descends from heaven upon our vineyards, there it enters the roots of the vines, to be changed into wine, a constant proof that God loves us, and loves to see us happy.[/quote]
Which works for me, since beer is a bit too fizzy for my PEG while WINE works wonderfully.
charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Aug 2009 Posts: 32 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2009 Posts: 32 | [quote=Charm2017]As a postscript to my prior post. Let me clear up a common misperception that Ben Franklin said that Beer is the proof that God love us. Here is the actual writing of Ben Franklin
[quote]For the record, here, in a letter addressed to Andr� Morellet in 1779, is what Benjamin Franklin actually did say:
Behold the rain which descends from heaven upon our vineyards, there it enters the roots of the vines, to be changed into wine, a constant proof that God loves us, and loves to see us happy.[/quote]
Which works for me, since beer is a bit too fizzy for my PEG while WINE works wonderfully.
charm [/quote]
Charm, I haven't spent a lot of time on this board until recently but I can tell you're my kind of people.
Dx 8.14.08. 42 at diagnosis. Stage IV Tonsil. Tonsillectomy 8.25.08. Induction chemo (9.29.08) (taxol and carboplatin) 5 weekly treatments. 35 rad and 6 concurrent chemos. Finished 12.22.08. No peg, no port. Neck dissection Feb. 09
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 |
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jan 2009 Posts: 225 "OCF across the pond" Gold Member (200+ posts) | | "OCF across the pond" Gold Member (200+ posts)
Joined: Jan 2009 Posts: 225 | Maybe he was misdiagnosed in the first place, or they mixed up the scans?
If not it's miraculous, it must be the English beer or real ale. Good because i drinl ale and stout, and our consultant said it's the least harmful alcohol.
Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | You know I don't find this wierd or miraculous. Cancer is a disease and our immune system battles cancer cells everyday. The issue is that cancer is our own cells, not a foreign body so if our immune system doesn't recognize it as a threat then it does nothing to stop it. If it does recognize it as a threat then it will fight and possibly irradicate the disease.
Is it likely once a life threatening tumor has developed no...has it happened before? I think so. This guy is a lucky b*st*rd and if I were him I'd be thanking my lucky stars.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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