| | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) |  "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | No words - just hugs
(((((((((((((((((((((((JIM))))))))))))))))))))))))
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | We are all in need of a "Jim fix"...we really miss you a lot! Do what you gotta do and hurry back. ((((((HUGS))))))
You are definitely in my thoughts and prayers at all times.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Jim, we all love you. Fight as hard as you always do because we all need you here xoxo.
Wendy
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Jim, as you probably know I have been MIA for a while and your thread was the first one I locked into. I am so sorry that this "bastard of a disease" (as Danny Boy would have put it) has struck you again. I know that you will fight it with all you've got.
It serves as a reminder how fragile life is and how we must make the best of everyday. You have raised the bar and set an example in the this area that we can only hope to aspire to. My prayers are with you for a successful outcome.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Thank you all for the big needle of confidence you have given me. I think right now, people that that we deal with everyday are more important than meds.At least mentally they are. I am going to my daughters today to just get away and to play with and tease the kids of all ages. LOL As long as one doesn't DECK me. I put my house up for sale yesterday and I hope it sells fast even if I have to take a butt whippin on it. I will either buy another where I am from, close to my family, rent one or move in with my daughter as she wants. I want everything as easy as possible for all of them to see me when they want or to go to school functions with. I called my granddaughters yesterday evening and my ex answered. We talked for about a half hour and it relaxed me some. I guess we should have never married but remained friends. I love my ladies in our forums too.. Have a great day all. EzJim the dipstick signing off for now.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Dipstick?? HARDLY. I can think of lots of other adjectives...like ...Charming, A Tease, Caring, Strong, Sensitive, Giving, Purposeful, Handsome and Gentle. I feel your pure, loving spirit. I am sending you many prayers for your continued strength. Let us know what you decide. We are here for you!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I can't believe I just this thread now. Christine, thank you for the update.
Jim, it's good to see that you posted here. I'm so sorry to hear this news. But, as David said if anyone can beat this..it's you. I miss you on the forums so much!! Even your post here made me laugh...you are not a dipstick and you know it!! Do you think you will stay with your daughter? That may be nice for you....I'm sure it would make her happy to be with you and take care of you.
We love you Jim. You are so friendly and I remember you posting on my very first newbie thread!!! lol
xoxo
((((((((((((((((((((((HUGS))))))))))))))))))))))
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jim, its nice to see a post from you. It sounds like a great idea to live with your daughter. This surgery isnt easy and you will need help when you come home. Even as independant and active as you are, you still will need help. Hope you had a great day with your grandchildren 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I have been away for a couple of days with no internet and was so very sad to read Christine's post this morning.
I have no words either that have not already been said.
Just a big {{{{{hug}}}} from me.
Love
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Mar 2005 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2005 Posts: 58 | So sorry to read about Jim's diagnosis. I have had this surgery. My jaw bone was replaced a piece of bone from my leg. The surgery was very successful. It is a long surgery,but you are not award of the passing time. It seems like an eternity for your family awaiting the results and completion of the surgery. The recovery time for me was about three weeks in the hospital. The surgery wasn't as bad as it sounds. It can be done with positive results. My surgery was seven years ago and no reoccurence. The most important thing is your positive attitude, which I gather from reading your posts that you have. It will be over soon and I wish you a quick recovery.
Hacklene
Hacklene
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