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#107012 11-14-2009 07:39 AM
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I got a message from Jim yesterday. Unfortunately its bad news. Jim does have cancer again. He wrote its in his jaw bone and tongue.

The operation would remove his jaw and tongue. The jaw will be rebuilt with a piece of his leg bone. Its aprox a 15 hour operation. There are not any guarantees it will work, it might only give him more misery. He also said, he learned that we never get ready for the words that we might die.

He said the doctor from Friday told him his original doc messed up since he didnt give him chemo and radiation following his surgery. The new doc gives him straight info that he can understand. He is still processing all the info. His daughter was with him for the doctor visit. Jim goes back on the 24th for another consultation.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #107013 11-14-2009 07:40 AM
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Jim this was the hardest post I have had to write. I am so sorry you are going thru this. If you have questions that I can help you with, please just ask. Im here for you. Dont forget the fact that everybody is different. Please dont compare yourself to what I went thru. Sending prayers and love your way!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #107016 11-14-2009 08:46 AM
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Posts: 794
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Thanks Christine.

Jim,
I am so sorry. I am at a loss for what to say right now. I can't believe you were able to talk to me on the phone for close to 15 minutes the other night! I am hoping with all that determination you showed in being able to do so, will also hold strong for this next hurdle.
Sending all the love and strength I can to you. Stay strong Jim.

With prayers and blessings to you and everyone on this board.

Donna


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
ChristineB #107017 11-14-2009 10:06 AM
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Thanks for posting information on Jim, Christine. It's just not fair for him to be going through all the pain and disappointment he has now. I haven't been on the forum very long, but right away I realized how important and loved he is to everyone, and how he jumps right in there to help others with their problems. All I can do is send my heartfelt hope and prayers, and ask that you pass them along to him and keep us informed. It makes me sick to my stomach to hear news like this, as I'm sure it does to all who admire and love him. May the good Lord be with him and ease his pain and help him survive.
julieann

Last edited by julieann; 11-14-2009 10:21 AM.

Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #107018 11-14-2009 10:20 AM
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Wow, Christine thank you so much for updating us on Jim's condition, although not what I was wanting to hear. I really don't know what to say. I just feel so sad. This cancer sucks! I will continue to keep Jim in my thoughts and prayers.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
slim #107019 11-14-2009 10:50 AM
Joined: Jan 2008
Posts: 706
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I hate this cancer so very much. Hang in there Jim-you are an inspiration to so many people. I'm just so sorry you have to endure so much pain and suffering. Neil had that surgery with the leg bone replacing the jawbone that was removed so if you have any questions-I can help.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
suemarie #107022 11-14-2009 01:10 PM
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Posts: 8,311
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Jim,

We are all 1000% behind you and if anyone can beat whatever odds they may throw at you, my bets on you guy!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #107023 11-14-2009 01:24 PM
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Christine,

Thank you for the update. I can't imagine how hard it must have been to post it.

Jim,

I can't imagine how hard it must be to be living it. My heart, my thoughts and all my best prayers are winging their way to you, my friend. I only wish I had more to offer than that.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Sorry to hear the sad news, will keep you in my thoughts and prayers, Jim!


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #107026 11-14-2009 02:44 PM
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I'm so sorry Jim, my heart is saddened to read this post. You will be in my thoughts and prayers!!


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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