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EzJim #108210 12-03-2009 06:39 PM
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It's good to hear from you anyway Jim.
Can you call them and ask what is going on?
Hard to believe that you could upset anyone confused
Love
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #108220 12-04-2009 02:20 AM
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Hope all is going ok Jim. I know there's nothing worse than waiting for results. Steve's PET scan results took a week to come in. Certainly raised my bp alot. Stay positive Jim and I'll be thinking of you.

Wendy


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
EzJim #108243 12-04-2009 01:02 PM
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It's good to hear from you even if you have no news yet. Waiting is always the hardest part. Try not to let it get to you although I know it's probably all you can think of... or it would be for me, to be honest. Hope they call you this afternoon to tell you it is all set! Thinking of you and keeping you in my prayers...

Nancy T


CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
Nancy T #108262 12-04-2009 06:11 PM
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Nancy, they did call this afternoon and now he wants my daughter to call him Monday from work. The big holdup was one of them worrying that I might have metal in my arteriers from the aneurysm. Geez, I have had at least 3 MRI since then. LOL Biut he wanted the proof from the other Hospitals.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #108277 12-04-2009 10:47 PM
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Sigh ... wait and wait and wait some more. It drives me nuts. I'm rooting for you, Jim - you are like the Energizer Bunny - or an ornery coot - & I mean that in the nicest way:o)

Hope your weekend is quiet.

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Marlene41 #108282 12-05-2009 09:31 AM
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Man...couldn't they have you told you that earlier? Don't these docs understand that waiting really hard?!? Jim...you are a strong man as we all know...hope you can relax this weekend and get things moving on Monday...


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #108289 12-05-2009 10:12 AM
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So sorry to see you have to go through more stuff. It's good to see
how positive you are, you are a strong man!

Sometimes they are too careful and the rest not careful enough!!!!!! I hope you get your heart in check, I sure can
see how it would be stressed out!

Thinking of you...
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
peace4uall #108306 12-05-2009 06:26 PM
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EZJim

Wow, what an unnecessary hassle you have to endure. I hope this all gets straightened out Monday. I don't think the doctors truly understand whom they are messing with when they mess with you. Keep the faith brother
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
EzJim #108320 12-06-2009 06:23 AM
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hang in there pal and keep fighting.
Nancy


caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
nancys2 #108360 12-06-2009 07:28 PM
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I think It's time I inform them about the Head Frack we have in the Forums. LOL Let Charm handle thoseoung punks for me. Charm, you are one guy that I bet would make their shoes squishy. Thanks guy.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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