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ChristineB #106024 10-29-2009 02:09 PM
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I've been off the forum for awhile w/swine flu but am over it now and just got back on to check on you and surprise!!!!! I am delighted to see you back on here and will continue reading now to catch up!!! Take care - love to you and Travis!!!


CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
Nancy T #106737 11-09-2009 07:50 PM
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You requested a read only blog and I have just read your latest news on it.
Thought I would post here to say how happy I am to hear that you are doing so well.
It must be a great feeling to gain back your independence and be able to do so much for yourself now. Especially now that it is getting closer to Travis�s departure.
Hope you continue to get stronger with every day.
{{{Gabriele}}}


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #106740 11-09-2009 07:56 PM
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Gabe, thanks for your well wishes. Im doing much better than I thought. After such a rough time in the hospital and when I came home, I thought it would take me longer to get to this point.

Hope all is well with you and your birdies smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #106787 11-10-2009 06:25 PM
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So glad to hear things are going well Christine.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
ChristineB #107391 11-19-2009 02:16 PM
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Posts: 238
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I'm very happy for you that you are getting better quicker than you expected. That's great - keep it up !!!


CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
Nancy T #107412 11-19-2009 06:02 PM
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Im currently battling an ear infection. There is also a large wound that is still healing from my surgery that now is infected. It was doing great, the wound vac was taken off, now its a step backwards. The wound vac will go back on. Im being checked for other bacterial infections too, maybe mersa again frown

Besides those setbacks, I feel good. Just trying to stay busy so I dont fret too much over Travis not being here. Darn kid was my companion everywhere, now I feel very much alone.

Lets all now focus our prayers and well wishes on Jim. He called me last night, sounding positive. He told me he will be moving in with his daughter which is a very smart move. Now he will have family there with him. Next week he goes back for another consult, then he will know more.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #107415 11-19-2009 06:14 PM
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Thank you for the update on Jim...

I'm sorry to hear about your setbacks, I'm sure it is frustrating. I will still be thinking of you and praying for you and Jim:)

xoxo


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
ChristineB #107624 11-23-2009 12:35 PM
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Posts: 238
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Christine, hope they get can turn your "setbacks" into jumps forward very soon. You have really amazed me at how fast you've come along. Recovery seems to crawl sometimes (I've learned from my mom). I know you must miss Travis terribly. I think it was God's will that he was able to stay here with you as long as he did before going into service. You needed him.

Also, I am grateful for the updates on Jim. I am sending prayers his way that he can beat this thing once and for all. Take care.

Nancy T.


CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
Nancy T #107696 11-24-2009 12:26 PM
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The wound vac is now back on. Its a good thing, it helps to heal my neck wound faster. My ear infection has finally cleared up. Im in alot of pain from my jaw right now, Im taking alot of pain meds.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #107723 11-24-2009 06:23 PM
Joined: Dec 2008
Posts: 1,004
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So does that mean they don't think you have mersa? I know an ear infection isn't fun but it sure beats mersa and going back to the hospital. Sorry about the pain, hopefully the meds are keeping you comfortable.


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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