| | Joined: Jul 2009 Posts: 38 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2009 Posts: 38 | The Rad onc called today. There was still some activity on my follow-up PET last week. They want to wait to get the pathology from the biopsies they will do during my neck dissection next week before they formulate a "plan". Good news: at least the cancer hasn't spread in any way.
Sigh.
Mark
BOT Squamous cell, stage IIIa
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Mark,
My RO wants to wait at least 3 months before a PET as he said site would most likely remain fairly hot while the healing process takes place. I am scheduled for two visits 1 month and 2 months out but no PET for at least 3 months.
Kelly
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I never had a PET post Tx.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2009 Posts: 13 Member | | Member
Joined: Jun 2009 Posts: 13 | Kelly,
My post tx PET was 3 months+. Waiting will minimize false positives common to PET scans.
Bob
Bob, age 64, reformed smoker since 3/85, moderate alcohol,
Right tonsil, 5/20/09 tonsillectomy, T2N0M0, IMRT started 6/17/09, ended 8/3/09, 33TX, no chemo, 11/6/09 & 7/21/11 PET/CT Scan clear
| | | | | Joined: Jan 2009 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2009 Posts: 71 | My CT scan was two months after treatment and the PET was four for the same reason the Bobster posted - false positives do happen.
It takes awhile for your body to rid itself of the dead cancer cells. Are your lymph nodes still getting smaller?
57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
| | | | | Joined: Jul 2009 Posts: 38 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2009 Posts: 38 | well my lymph nodes were getting smaller. Now they are gone. Made it through the neck dissection. Biopsy on the BOT was negative, still waiting for the pathology on the lymph nodes.
Mark
BOT Squamous cell, stage IIIa
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