| | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Thanks for posting Carol. Tell Jim were thinking of him. It seems from recent posts that his pain had become beyond bearable even on meds and he has had terrible pain before. I do hope they find the cause this time.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2009 Posts: 90 | Sending lots of love and best wishes to you Jim. we miss you already. Hurry back, it's not the same without you.
Hope you get that nasty pain under control
nancy
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Thanks everyone. I'll give him all your messages tonight when I call him. Carol | | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hello Carol:
I hate to see that Jim is back in the hospital - I pray that he can get some relief from his pain, and also a solution for it. All the entries show how much he is admired - I personally enjoy reading his ideas, solutions, experiences, and knowledge of most forum issues. Please tell him I hope he returns soon.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Hi everyone. I just wanted to let you all know what is happening so far. Jim's son called me last night. The doctors found 2 more lesions in his mouth, I think he said. The jawbones are all deteriorated and he needs reconstructive surgery for that. In order to do that surgery, Jim needs a feeding tube. In order to put in the feeding tube, Jim has to have his stomach redone. They have to undo the surgery where they stretched his stomach up over the esophagus. Jim's having biopsies Friday. My sister and I are going down to the hospital tomorrow for this. Jim called last night and was in alot of pain. He's not sure what he's going to do about the surgeries until he finds out the results of the biopsies. He said to tell all of you hello. He misses chatting with all of you. I'll post on here Saturday morning whatever we find out. I forgot to tell you, if he decides to have the reconstructive surgery, he'll have to go to Ohio State University Hospital, in Columbus, OH. I'll talk to you all later. Love you all, Carol | | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Carol,
Thanks for the upadate, although I wish it was better.
Please tell Jim we are all praying for him.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | You tell Jim that he needs to hurry up and get back here and stop flirting with those nurses.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | Lots of thoughts and prayers headed his way!
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | I agree with David..Tell him to stop flirting with the nurses and come back and flirt with US!! We love it...and him. We miss him when he isn't around. I'm praying that the biopsies don't show cancer. He's had more than his share of troubles!!
OXO--Colleen
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Telling Jim to stop flirting would be about the same as telling him to stop breathing! He is a charmer = I have a feeling that some distant day, the Angels will have easily convinced St. Peter that his charming presence is needed in heaven. But, I do repeat - some DISTANT day. For now, we need him to get his butt back here. Tell him not to stop to collect a hug from every nurse on the way out - just tell him to get back here - and hopefully he will be painfree when he does.
Carol - please add my best wishes to those of all the other posters. Send him a hug from me.
Donna
Last edited by Pandora99; 10-29-2009 12:38 PM.
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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