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EzJim Offline OP
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I am looking for a post from christine if there are any. She is my hero. THat is one tough lady . All of you ladys are tought tho , but Christine was out for twice as long as I was and coming back strong. Please let me know if she has posted anyone. Jim


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #105452 10-21-2009 07:48 AM
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Jim, Christine posted on the ChristineB post. Here is her post:

Thanks for all the kind words. They mean alot to me

"Ive forgotten how bad you can feel battling cancer. Was struggling yesterday, thought I would go right back to the hospital. Saw my ENT who reassured me that Im doing very well. My son (Travis) ordered me home and in bed w/ the feeding pump running. Doing a little better now thanks to Travis."
_________________________
Christine
Stg 1 SCC 6/15/07 L chk & by L molar, age45
2x cispltn-35 rad end 9/27/07
Port/PEG, lost 65 lbs, trismus
4/4/08 recur L cheek
surg 4/16/08 clr marg
1/09 PEG/port out
85 HBO
3/4/09 teeth out
7/2/09 its back
8/24/09 PEG, trach, surg 2 remove L jaw/floor of mouth, neck dissection


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
slim #105470 10-21-2009 12:40 PM
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Thinking of you daily, Jim; hope that pain gets knocked down!


GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
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EzJim Offline OP
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Thanks for the updstes you 2 and enjoy life as it was meant ... Jim


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #105658 10-23-2009 03:01 PM
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Posts: 229
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I've missed a lot this week.

I'll be sure to keep you in my thoughts and prayers Jim.


Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
Joined: Feb 2008
Posts: 38
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Hi, Everyone. Just wanted to tell you Jim called me last night, and he's back in the hospital. He was in alot of pain. He said they're still trying to figure out where all the pain is coming from. He was feeling a little dizzy. We talked for quite some time. I could tell it was bothering him. I'll let you know when we find out anything. Love you all, Jim's sister Carol

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"OCF Down Under"
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Thanks for the update Carol. Tell Jim to get better real quick because the OCF boards aren't the same without him. Send him my love from Australia and tell him I hope he's ok.
Wendy


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
WendyG #105938 10-28-2009 08:08 AM
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Please tell Jimt hat we miss him and we too hope they can get a handle on this miserable pain. He is tough and determined, but this pain has been just more than any human should have to deal with. I am very much looking forward to his return home when they have the pain under control.

Give him a big hug from me - on behalf of "Jim's Angels"

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Yup, the boards are not the same without him! Big hugs headed his way and I hope to see him back soon.


Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
Joined: Jan 2008
Posts: 706
"Above & Beyond" Member (500+ posts)
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Prayers being sent his way.


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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