| | Joined: Jun 2009 Posts: 51 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 51 | Christine,
So glad to hear that you are home. We all look forward to reading your posts again, but take a nap first...sleeping is healing! Hugs to you and Travis!
Diane
Caregiver for Husband, Dana, age 52
DX 11/08, SCC right tonsil, Stage 3
RND, right tonsilectomy, Peg tube installed 12/08
Cisplatin X3, IMRT X35, last TX 3/09
CT scan 5/09 clear
PEG removed 8/27/09
1st PET scan clear 9/10/09
Minor surgery to repair PEG site 9/17/09
| | | | | Joined: Apr 2009 Posts: 128 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2009 Posts: 128 | Christine,
I have been out of town and today I saw that you are home, must feel good huh?
I will continue to pray for you. Take care and go slow!
WFC
Age 57 at dx on 3/30/2009 by Dentist
SCC of R tonsil S2 Poorly Differentiated - 2.5 cm
Rad - IMRT 5x a wk for 8 wks starting 5/4/2009
No Chemo
Last Rad treatment was 6/26/2009.
Two years down as of 3/30/2011!
God bless all affected by this monster called cancer!
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Christine,
Sorry your first day home was a tough one. I hope each day gets better and better!
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Christine,
There are definitly going to be some hard times and we all wish you didn't have to deal with this. But you are an amazing woman and you are strong. We all love you here and I hope that helps you.
xoxo
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Christine, When you get the time. lewt me know how much memory you lost. I lost about 9 months pre out of it but that could be from the implants . really hope you didn't lose any. LOL I didn't have much to lose anyway so I have a prob;em. LOL Got myself laughing now. Luv Ya lady and I am so glad you are home again.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | I just got off the phone with Christine. She is feeling better today. Yesterday was a rough one and she thought she would have to go back to the hospital. She toughed it out and is happy that she didn't have to go.
Getting around is tough for her and right now she is in bed resting and has the feeding tube going 24/7.
Travis leaves for the Marines on Sunday. The timing really sucks.
I suggested that she call the ACS and see if they will do transportation for her to appointments. She does have a friend from work that can drive her on Mondays and she arranged for her next visit to the doc for Monday 11/1.
She sends her love to everyone and wishes she could spend more time on the computer.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Take as much time as needed Christine, The future is what you need to plan for now, You are the LADY of this place it seems. You sure do deserve that title after all the posting you did up until surgery time. My female hero and I don't consider that for many people just like idols, I have none of those either.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | Christine,
I so admire your strength. I continue to will you all of mine; mentally and spiritually. May you heal quickly.
All of us, who care so deeply about you, touch each other through the magic of cyberspace and generate a spark that encompasses you, and fills your room with light and love.
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 |
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Jerry, thanks for posting for me. Past few days have been better. I think Im falling into a routine, need lots of help with it this time around. So far so good.
Due to some paperwork mistakes, my son has been delayed in leaving for boot camp. He was ready to go and will leave sometime with the next 3 weeks. Im selfishly glad, I wasnt ready for him to leave yet. He is a huge help to me and I will be much more stable the longer he is home. Even one week more will make a big difference.
Im never going to catch up with all the posts Ive missed during the past 2 months. Sadly, so many new people to welcome.
Patty, thank you for the lovely pictures of Alaska.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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