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Deejer47 #105344 10-19-2009 12:23 PM
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"OCF Canuck"
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I see Carol (Jim's sister) was on earlier - but no update...Grrrr... Hopefully she was printing off all of our good wishes to take to Jim for him to read.

Sure would be great to get an update!

An Impatient Donna!!


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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Carol (or anybody),

Can you post the name and address of the hospital that Jim is in? And his last name also, as I know him only as EZJim (but maybe that is enough for them to track him down).

I would like to send him a card to cheer him up. Of course it has to be one that will make him laugh.

Please let him know we are praying for him!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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Posts: 1,940
"OCF across the pond"
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Jims surname is Westling


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Deejer47 #105349 10-19-2009 01:50 PM
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Hi,everyone. Well, Jim went home today from the hospital. He said he would update all of you. So, I'll leave the details up to him. Thanks for the prayers and the love. Carol

Cookey #105350 10-19-2009 01:52 PM
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Hi Carol,

Please give Jim my heartfelt good wishes. I don't post very often anymore, but I check the forum frequently. He is such a stalwart, compassionate poster here and we can always count on his responses. Many of his posts have me laughing out loud and he has a kind word for everyone. Please let him know he has more prayers coming his way. Geri


Geri-CG to husband Richard, 62 yrs old. Former smoker, quit 30yrs ago, light drinker. Dx after tests with BOT T1N1M0. Tx to start by end of Dec. Seven wks IMRT with 2x Cisplatin-2x Erbitux. Peg in 12/08- removed 4/21/09. Looking good so far. Clear Pet &MRI 8/2/09
Geri #105368 10-19-2009 05:30 PM
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EzJim Offline OP
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Hi all to all of our great family. I did come home today about 3 PM. Nothing has been settled about the pain except it is there. My ENT stopped by my room last nite somewhere near 10 PM. He told me the plans and what we will be doing. He went to the WVU game but stopped on his way home. He is like the other 2 Drs I have, unbelieveable. I will be evaluated by the Chemo Dr and have to see him until we hit the right solution to this pain. I was kept pretty much pain free for the 4 days in the hospital. After this we should know what will happen. Thanks for caring all and Carol thanks you too. I have heard of Hot Pants, seen some really hot ones LOL but never Hot Mouth . Now I know Hummmmmmm, Be careful all. Hot Pants OH YEAAAAA, but Hot Mouth stay away from. Luv ya all. Jim


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #105369 10-19-2009 05:34 PM
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Donna,Geri, Cookie, Susan . There is the post and for now I wish it were 3 months down the road. Now I am going to bed nd get some sleep without a thermometer going down my throat. LOL But she was cute.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #105374 10-19-2009 06:41 PM
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Sleep tight friend.

With all of us behind you and with your amazing courage, I have no doubt that you beat the beast again.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
wilckdds #105375 10-19-2009 06:46 PM
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Hang in there Jim, always thinking you. Stay tough.


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
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Jim -- We are keeping you in our thoughts and prayers every day, buddy!!


Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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