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#105158 10-14-2009 05:30 AM
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EzJim Offline OP
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It seems to me that ever since the ear tubes were put in my ears, that this pain has gotten so unbearable. The left one had to be replaced after 6 days because it was blocked with blood and whatever. Since then, the pain has increased and is on the good side on my face , jaw and throat. It's nice to give the right side a break from being painful, but this left side is getting to be very bad. I am wondering if the tubes can be the cause of this? This pain makes fun of pain meds. Any ideas anyone? I know that I need a biopsy there but I keep hearing about being put to sleep too many times. I tell them for every minute I am out that I get one extra month to live. LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #105265 10-17-2009 07:13 AM
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Hi, everyone. I spoke to my brother on the phone last night, and he's in the hospital, at Wheeling Medical Park. The doctors all believe the cancer is back. He's in alot of pain. He said they have to do surgery on his stomach, to pull it down from behind his ribs, in order to put the feeding tube in him. There's supposed to be a family meeting with the doctors on Monday to see what the "game plan" is. He's in very good spirits. He said to tell all of you "hello" and that he has beaten this once before and he'll beat it again. I told him he will, too, with the Lord's help. He's a fighter with a strong constitution. I guess that runs in our family. So, please keep him in your prayers. I'll keep you all posted. Love to all of you, Jim's sister, Carol

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Hi Carol
sorry to hear your news and send our best wishes to Jim xx


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #105270 10-17-2009 10:32 AM
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Thanks, Liz. I'll give him the message tonight, when I talk to him, again. He called this morning and actually sounded really good. Carol

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Hi Carol:

I just found out about your brother on the forum, and just want to add my prayers for him to get through this. I'm fairly new on the forum, but have gotten loads of good info fom his posts, so tell him to hurry back so I can get more.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #105273 10-17-2009 01:10 PM
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So sorry to hear that EZJim is in the hospital and that the cancer is back. Thanks for posting, Carol. Please send our good wishes to him and we'll be looking for an update on Monday.


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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Carol,

Thank you for letting us know. I'll be adding Jim to my prayers, along with so many others. Its hard to know who is more stubborn and ornery, Jim or this cancer.

My money is on Jim.

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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Hi Carol,
So sorry to hear about Jim and will wait to hear when you have met with the doctors. When you talk again please send my best and tell him I am missing my daily dose of jokes.
From one of his angels,
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #105277 10-17-2009 02:57 PM
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Hi Carol,

Sorry to hear this about Jim. I agree with everyone else, he is tough and he will beat this. I will keep him in my prayers also.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022
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Oh no. I feel like I just got kicked in the gut! Tell him that he will be sorely missed. I know Jim feels (and we agree) that one of his purposes in life is to be here for us. Tell him that "his angels" are holding him close and that we are there for HIM.

Sending all good thoughts and extra special prayers his way. I look forward to hearing the next update.

Donna


Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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