| |
| | Joined: Oct 2008 Posts: 251 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Oct 2008 Posts: 251 | [quote=Eileen]I am having the same problem. I have signed up for this newletter at least three times over the months including once yesterday and have NEVER gotten a letter requesting confirmation. My SPAM filter sends me an update once a day with everything it flagged and I check it carefully. What is Megan's number at OCF. Eileen [/quote] I went through the exact same thing last December when Brian posted about a possible Jan. 2009 Newsletter. I NEVER received a confirmation email and my spam system is set up like yours Eileen. Chester looked it up and said I WAS signed up even though I did not get the confirmation email. If you are not signed up for it .... Probably the best thing to do is to call Megan, because she can fix it.
Catherine
2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Can you give me a telephone number to call Megan? Thanks.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | Megan's number is 949-723-4400 after 9:30 AM, Pacific time zone.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | OCF Newsletter made it thru the Gmail spam filters this time !
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
| Forums23 Topics18,245 Posts197,129 Members13,316 | | Most Online1,788
Jan 23rd, 2025 | | |
|
| |
