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mhupe #104893 10-08-2009 07:15 PM
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Thanks for the update, Margaret! And of course, thank you Travis. Christine is never far from my thoughts so news of her progress is much appreciated.


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
margaret_in_ma #104897 10-08-2009 07:50 PM
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I had a nice visit with Christine tonight. She is looking much better than the last time I saw her. But she so much wants to go home! It certainly has been a long hospital stay � 45 days already!!

She does appreciate all the cards and well wishes, and she really misses chatting with all her OCF family.

She is in the new �state-of-the-art� section of the hospital, and it has just about everything in the patient�s room � except for internet access. They do have wireless access in other parts of the hospital for the public and patients to use; however, they won�t let Christine venture down there. I�m sure if she got that close to the door, she may just leave!!



Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Susan2992 #104918 10-09-2009 06:04 AM
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Posts: 8,311
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Margaret,

Sneak her in a small notebook.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #104921 10-09-2009 06:17 AM
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Lol.....I bet she can't wait to get back on the computer. She will have a lot to read on this thread alone!!

Susan...she can have visitors now? I was waiting to see what was happening. I know Travis said her therapy sessions are intense and they were saying no visitors. It will take me about 2, 2.5 hours to get there so I would hate to go all that way and have her not be available:)


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #104929 10-09-2009 07:35 AM
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Suzanne,

She is back at the main hospital on Cedar Crest, isn't getting therapy and is pretty much confined to her room. So she would love to have visitors.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Susan2992 #104969 10-09-2009 11:37 PM
Joined: Aug 2009
Posts: 27
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Posts: 27
my mom wanted me to post that she says thank you for the t shirts from the walk


Travis
son and caregiver for ChristineB
TravisB #104975 10-10-2009 05:01 AM
Joined: Jul 2009
Posts: 453
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Posts: 453
Thanks for the updates everyone. For anyone that is going to see her please pass along my thoughts and love for a very special lady.

Wendy


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
WendyG #105003 10-10-2009 04:48 PM
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Posts: 1,004
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Thank you Susan


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
TravisB #105006 10-10-2009 08:13 PM
Joined: Jun 2008
Posts: 475
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Travis, please tell her she is welcome. That is the least I can do for her! I sent one for you as well!! I am glad she is doing better and please give her my best!!!

Susan


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
Susan Lauria #105016 10-11-2009 10:29 AM
Joined: Apr 2005
Posts: 2,219
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Posts: 2,219
I was finally able to hook up with Christine by phone this morning. She sounded good and is very anxious to get out of the hospital. She is finishing her last round of antibiotics today and hopes to be going home this week, I think.

She is not going back to the therapy area and I assume that they will have someone work with her at home on this.

She misses everyone and sends her love.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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