| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Diane,, me too LOL but wnen you get lost on your own puzzle, It's problem time. Oh am I ever good at that.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | It works!!! I got confirmation today that Christine is receiving the e-cards from the hospital site!!
This is a free service, and a way to get your message directly to Christine.
Use the web link below (if it is not clickable, you can copy and paste the URL)
http://www.lvhn.org/lvhn/Contact_Us|1124
Enter the information requested:
Christine Brader
For Room # Enter the following (5th floor, room 24 at 17th & Chew)
For site, click on "Cedar Crest"
After you select the card design, scroll to the bottom and enter the security code. Then, click on "send card".
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | That's awesome Margaret...thank you!! I have a feeling Christine will be bombarded with e-cards:)
I just sent one and it was easy!!
Last edited by suzanne98; 09-26-2009 09:16 AM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Margaret Thanks for the web site to send a card. this should be clickable christine card Your info was excellent, all I would add is not to forget to enter the security code at the end before you click, i overlooked the box and had to start over Thank you again for sharing this link. charm
Last edited by Charm2017; 09-26-2009 12:16 PM.
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Travis-I have someone that might be interested in your mom's house. Can you let me know the phone number for your realtor and i will pass the info on.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Aug 2009 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2009 Posts: 27 | Hey guys quick update on my mom. They are moving her back to the cedar crest location, she has a slight fever and they want to keep a better eye on it there. Other than that she is doing well im tring to get her to eat more and more everyday.
Travis
son and caregiver for ChristineB
| | | | | Joined: Jan 2006 Posts: 757 Likes: 2 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 757 Likes: 2 | Travis,
Thanks for the update. Hopefully the fever isn't anything serious.
Is she back in the burn unit? Will she be allowed visitors? How about flowers? Do you have room # so we can send cards?
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)
| | | | | Joined: Aug 2009 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2009 Posts: 27 | My mom wanted me to thank everyone for there support. She is back in the cedar crest location because of her fever. It turns out that fever was caused from blood poisoning the doctors are saying she will be in the hospital for another two weeks. She said she can have visitors again so thats atleast some good news  she is on floor 6k room 27 if anyone would like to see her.
Last edited by TravisB; 09-28-2009 06:11 PM.
Travis
son and caregiver for ChristineB
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Oh no! Travis, tell your Mom that moving backward is NOT acceptable! And that I'm sending out all my good energies to her.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | If you send a card or ecard or plan to visit...please use this new address:
Lehigh Valley Hospital - Cedar Crest
Cedar Crest and I-78
P.O. Box 689
Floor 6k Room 27
Allentown, PA 18105-1556
Hope she is feeling better soon. She can have visitors. I am assuming her password is still "ginger".
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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