| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Damn, I have to slow down trying to type
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Travis, I just have to say this, The Marines won't have to make a man out of you. You are alredy one great man going in. Anyone would be proud to call you SON.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2009 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Aug 2009 Posts: 27 | Hey guys just went to see my mom I cheered her up a little bit by bringing her Mcdonalds sweet tea and some flowers.... yes she finnaly can have flowers if anyone wants to send anything she is at the lehighvalley hospital on 17th and chew street in allentown she is on the 5th floor in room 24. Other than that I spoke to her doctor and he said they are gonna do another small surgery to clean everything up to get her ready to go home 
Travis
son and caregiver for ChristineB
| | | | | Joined: Jun 2009 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 51 | That's great news, Travis! The Marines are lucky to have you join them. You'll have the largest extended family in boot camp! Hugs to you and your Mom.....
Caregiver for Husband, Dana, age 52
DX 11/08, SCC right tonsil, Stage 3
RND, right tonsilectomy, Peg tube installed 12/08
Cisplatin X3, IMRT X35, last TX 3/09
CT scan 5/09 clear
PEG removed 8/27/09
1st PET scan clear 9/10/09
Minor surgery to repair PEG site 9/17/09
| | | | | Joined: Jun 2009 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 51 | Jim,
I love it when you don't slow down to type...I just love a good word puzzle...LOL!
Caregiver for Husband, Dana, age 52
DX 11/08, SCC right tonsil, Stage 3
RND, right tonsilectomy, Peg tube installed 12/08
Cisplatin X3, IMRT X35, last TX 3/09
CT scan 5/09 clear
PEG removed 8/27/09
1st PET scan clear 9/10/09
Minor surgery to repair PEG site 9/17/09
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Cecilia, our wonderful flower fund raiser, is on a vacation in Italy until the 27th. I tried texting her but I do not know if the message got through.
In the interim, I ordered some balloons and a magazine to be sent to her room with a card from all of us telling her that a big bouquet was coming soon and we were all thinking of her and wishing her the best.
I'll continue to try to reach Cecilia. If anyone from the UK would like to help please PM me, I'll email you her cell number. I'm not sure my calling plan has international capabilities.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Also, I found out when I ordered the balloons that you can send her a message through the hospital web site. Click on this link:
http://www.lvhn.org/lvhn/Contact_Us|1124
Enter the information requested:
Christine Brader
For Room (Put 5th floor room 24 at 17th & Chew)
For site, click on "Cedar Crest"
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | friends from the uk lol i wonder who that could be.You know my e-mail address .Oh by the way your links dont!
Last edited by Cookey; 09-24-2009 11:16 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Hi Liz! I just sent you a note on Facebook...that's the only email I have for Cecilia so I thought I'd cc both of you in the event she has a chance to check on that account. If you could reach her, I'd be very grateful! Thanks! The link worked for me, I wonder if it's a UK thing. The main web address is: http://www.lvhn.org/From there, I went to "contact us" and then to "send a card". Let me know if that works.
Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi everyone,
I had a great visit with our dear friend, Christine today. It was great seeing her and she has reconfirmed my feelings that she is one of the strongest people that I know.
She is overwhelmed by all the concern, love and posting that is going on about her. She doesn't understand how she could be missed so much. After about an hour and a half, I think I convinced her.
As posted above, she will have some more minor surgery next week and then hopefully go home soon after that. She has occupational therapy in the morning and physical therapy in the afternoon. Somehow, I luckily got there beween both of them.
There's no doubt that she has been through some really tough times and there certainly is some more to go. They have her pain pretty well under control. Her most uncomfortable area is where the skin graft was taken from her forearm. They have a drain in that area and I think that is causing the discomfort.
She is sorry that she can't make it to the David Nasto walk on Sat., but is determined to make the New York walk in April and next year's walk for David.
Christine can't wait to get back on the internet and the forum and asked me to send her love to everyone.
I met Travis and he is one devoted son. He spends a great deal of time with her every day and was there all the time even when she wasn't awake. He leaves for the Marines in about a month and will surely serve our country well.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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