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Teacher jon #111621 02-04-2010 06:11 AM
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When did you finish then rads?

Are you still getting chemo? You say 4 of 6?

What is/was the chemo?

Re eating, just eat anything you can.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #111634 02-04-2010 11:32 AM
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Were you able to work through any of this? Do you still have your job?

Scrambled eggs, soups, yogurt, cream of wheat, french toast, flat ginger ale worked for me.

I love your comment about 'parrot droppings'. I just had plain cardboard. Hang in there.

Take care,
Eileen



----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #111641 02-04-2010 02:28 PM
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Jon,

Good to hear from you.

I did hot dogs no bun, liver (can't taste it anyway) oatmeal, pudding, avacado, eggs with lots of melted cheese.

Kelly


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
Kelly211 #111643 02-04-2010 03:38 PM
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Jon,
If they have it in Thailand, I ate a lot of cheese cake. Lots of calories, went down easy and tasted tolerably.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

DonB #111651 02-04-2010 06:01 PM
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Jon,

I forgot this one,

I would take poundcake (sweetbread) slice it thin and lather both sides with butter and then microwave it or pan fry it. soft and buttery.

Kelly


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
Teacher jon #111653 02-04-2010 06:45 PM
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Posts: 5,260
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Jon, ham has a lot of salt in it,. If it bothers you don't eat it. Poach the eggs and they taste good on fresh butter bread torn into pieces or on pancakes with lots of butter. I hope you get to eating at least 3 tin=mes a day, I know it tastes like YUK but you need it to function.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #111655 02-04-2010 07:12 PM
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Yes Dave I finished the 35 Rads on 7th Jan 2010
I was due to have 2 more Cisplatin Chemo, but had bad reaction to the 4 I had, so they are waiting till MRI 13th March 2010 to see what if any further action is needed, considering my 6 cm lymph Node shrunk to 1 cm and they hope it will shrink further by the time the MIR is done.

But they did warn me if they think the primary base of the neck Tumor has not shrunk enough, surgery may be necessary but as my node has shrunk so well, they don�t think this will be necessarily for lymph node to be taken out or base of tongue, God I hope not. Or they may even give me 2/3 more chemo have to wait and see hopefully no more of anything.

Eileen No I was not able to work through any of this The problem I had was I stopped eating or drinking at home as I had no appetite and felts so ill so they took me into hospital for 5 weeks

As far as I know, I still have a job, they were very good To me, but can only take me back when they have a vacancy as they gave my job up.

I HAVE BEEN BOILING VEGTABLE AND ADDING Spag bol from dinner meal frozen food or in a can with butter and honey and two poached eggs on top with a slice of ham but now my body is rejecting this and makes me feel sick to eat it because the high taste of salt is making me feel sick, you don�t realize how much salt is added to shop products until you have chemo,,,,, have to find some thing else I feel as though I don�t want to eat again and feel weak slightly as I�m looking after my self basically even though I have male friend staying he is not domesticated lol

I find I can�t eat and bread or cakes it dries my mouth up too much and don�t have sweet bread here any way.

Thanks for your advice guys your great anything else you can think of by the way I we was trying to make milk shakes with banana but I find my mouth start to have a high flem lever again so I stopped it.

Teacher

Jon


"Base of Tongue Cancer", may be HPV cancer. swollen lymph nodes, half the tongue base Now T2/3 N2 MRI scan and simulation mask, 4 Chemo/35 rad of 35. Tumors gone. can eat. MRI April 19th , Nodes now all gone, was 6 cm, weight GAIN to 81 kg but found 2.1 grey area on MRI. Biopsy next.
Teacher jon #111751 02-05-2010 06:47 PM
Joined: Dec 2008
Posts: 1,004
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Hi Jon,

I can see how milk and milkshakes would cause a phlegm problems. I have not had radiation or chemo but I have had 4 partial glossectomies and struggled with eating. I found eggs to be good. They go down fairly easily. Of course, I had a lot of Ensure but they may cause the same problem as milk does for you. I also enjoyed vegetable soup and I would break up crackers and let them get soft in it. Hope this helps


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
suzanne98 #111948 02-08-2010 11:05 AM
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Jon,, throw that ham away.. Do you know how much salt goes into curing a ham ? Use fresh vegetables if you can get them, canned ones are full of salt too. The bread can be eaten if it is cery fresh, no crust and covered with butter and the soft poached eggs over the bread after you make it into very small pieces.Try panckes with your eggs over them too but don't get the pancakes too well done or it will hurt your mouth. I have been eating this way for over 2 years and learned a lot , Don't just cook, but invent as you prepare a meal. You can rinse a lot of the salt off of canned vegetables. The menu might be limited,, but it will be food which you need


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #111956 02-08-2010 11:33 AM
Joined: Jan 2010
Posts: 142
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Joined: Jan 2010
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They now make an Ensure that is Lactose free I can't eat or drink dairy prodcuts but I have not been having any problem with this product.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
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