Previous Thread
Next Thread
Print Thread
Page 7 of 40 1 2 5 6 7 8 9 39 40
Cecilia #102673 08-30-2009 03:39 PM
Joined: Jan 2009
Posts: 253
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Jan 2009
Posts: 253
If anyone is looking for a census, I vote to keep a "flower fund."
Sandyst


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter

SandySt. #102675 08-30-2009 05:32 PM
Joined: Jul 2007
Posts: 939
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2007
Posts: 939
Just to clarify... I didn't suggest to not send flowers but it seemed that so many of us were contributing that there might be an excess of money that might be put to a good use..really, how many flower arrangements can you send to one person. A flower fund for others undergoing surgery is a good idea..I tend to lean toward donating it to OCF but I can do that on my own.

I appreciate all the work going into the flower fund and it was not my wish to dampen the giving spirit..I just know how Brian talks about thinking of OCF when there are funds involved...I think that is my vote.

JMHO, Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #102683 08-30-2009 07:00 PM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
That is a great idea Deb. Flowers tend to rot after so long and that is why you will have trouble finding them inside a coffin when it's put in the vault and then the ground. It can cause deterioration of a body after so long.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #102689 08-30-2009 08:41 PM
Joined: Jun 2007
Posts: 718
mhupe Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2007
Posts: 718
Travis,

Thanks for posting another update. Sorry that your mom isn't healing as planned. I hope the leaches work and that she doesn't have to have more surgery.

Margaret


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #102690 08-30-2009 09:05 PM
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Down Under"
Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Also hoping that the leaches do the job...remember my grandmother having the treatment on her legs at least 45 years ago.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

Gabe #102691 08-30-2009 09:26 PM
Joined: Jul 2009
Posts: 453
"OCF Down Under"
Platinum Member (300+ posts)
Offline
"OCF Down Under"
Platinum Member (300+ posts)

Joined: Jul 2009
Posts: 453
Thanks for the update Travis. If anyone can get through this then your mum can. She's one tough lady that I admire greatly. Fingers crossed that the leeches do their job. Will be thinking of you all.


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
WendyG #102696 08-31-2009 04:11 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
The leeches do a great job. I watched a nurse packing a guys leg with them at the Steel Mill I worked in,. He had a sulphur burn from hot iron that burned him to the bone and this was the only treatment that seemed to work. It took awhile but his leg finally healed.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #102697 08-31-2009 04:14 AM
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 5,260
Travis, you have a mom that has the toughness of any fighter and the attitude of a winner. I pray for her mentally all day long and for the day she wakes up to see you there with her.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #102704 08-31-2009 08:42 AM
Joined: Sep 2006
Posts: 1,357
Likes: 5
"OCF Canuck"
Patient Advocate (1000+ posts)
Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Sep 2006
Posts: 1,357
Likes: 5
I would vote to keep a flower fund. I think that for the patient, having a tangible visual reminder of the support from OCF is worth alot. I don't think the diversion of these few dollars (in the big picture view) will make a difference to OCF. I think most of us donate or participate in fundraising directly for OCF (and if you don't you might want to consider doing so!), so the flower fund gets my vote.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #102705 08-31-2009 02:23 PM
Joined: Jun 2007
Posts: 718
mhupe Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Jun 2007
Posts: 718
Sounds like there is a groundswell for a flower fund that is far bigger than the ChristineB bouquet. Is any one interested in spearheading such an effort?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
Page 7 of 40 1 2 5 6 7 8 9 39 40

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,167
Posts196,922
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5