| Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jan 2009 Posts: 253 | Christine B. I think you are an amazing person. I've been reading your posts, and am so inspired by your helpful and supportive responses to posters.
I know that you will be going in the hospital soon for a 3rd reocurrance of OCF. I know that you'll do fine. With your attitude, you're already off to a great start. (I know Charm doesn't like to use the word "positive"). But hey, I call it as I see it.
I'm going to keep up with your recovery, and send you a note occassionally to cheer you up.
You're in my prayers. Sandyst
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0. Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09. OCF member/supporter
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sandy, thank you for your kindness. I appreciate it very much. Its been a long road for me. Every time I think Im better, I get it again. Three years in a row really stinks. This time I dont feel too bad, sore jaw and sometimes a little tired. I couldnt believe it when my doc told me Im stage 4 cuz its in the jaw bone.
For me, its easier to help other people with their issues. My experiences can help lots of other patients. I dont like to think too much about what I have to overcome for the next few months. I get too scared when I think too much.
Brian has created a web site that allows us to all lean on each other in our times of need. Even the strongest here need a hand sometimes. OCF members develop deep, long lasting friendships that only we can understand.
Thank you Sandy for your prayers and well wishes. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2008 Posts: 96 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Aug 2008 Posts: 96 | Dear Christine, You said it! You are my friend and I am thinking of you often. Please use us to lean on when needed, as you are so often there for others. Take care, Lori
Lori, cg to H Ron, age 56. Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05. Recurrence 7/08 Stage IV. Surgery 8/30/08. 2nd recur. 11/08. 2nd surgery 2/2/09. 3rd recur. 4/9/09. Erbitux wkly. 5/09-? Ron died 6/6/09. Lori also passed away 8/20/11, colon cancer | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Hey Christine For you, I make an exception and totally advocate "positive". (and my distaste for that term is when it is "mandatory" or as more often happens - really "Pollyanna" ) Don't be alarmed by the moon face thread as I think that unfortunate soul's multiple organ transplants was a major factor in his lymphatic system giving up, My experience with complicated surgery requiring tag team surgeons and going for ten hours is that getting a neck dissection thrown in was almost a freebie. You are in the hospital long enough for them to monitor the drains and have then taken out as opposed to being sent home with them in and you need to worry about them as often happens with a neck dissection alone So POSITIVE thoughts and best wishes. Eat up a storm this weekend and if your PEG is in, do some wine. Works for me Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Jan 2009 Posts: 253 | Charm: I wanted to rib you a little bit. You're such a sensitive guy! Luv Ya Sandy
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0. Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09. OCF member/supporter
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | No problem Sandy I did give you a hard time when you correctly predicted you would sail right through this. It's actually good for the new OCF posters to hear that the worst does not always happen. And you were and remain gracious about it all, instead of ascribing your "sailing" to some special character trait or magical supplement. Keep up the positive. OCF has plenty of room for yin & yang. Although I see my doncha just hate it has inspired Donna  charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | |
Forums23 Topics18,266 Posts197,181 Members13,366 | Most Online1,788 Jan 23rd, 2025 | | | |