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#101931 08-20-2009 01:03 PM
Joined: Jan 2009
Posts: 253
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Jan 2009
Posts: 253
Christine B.
I think you are an amazing person. I've been reading your posts, and am so inspired by your helpful and supportive responses to posters.

I know that you will be going in the hospital soon for a 3rd reocurrance of OCF. I know that you'll do fine. With your attitude, you're already off to a great start. (I know Charm doesn't like to use the word "positive"). But hey, I call it as I see it.

I'm going to keep up with your recovery, and send you a note occassionally to cheer you up.

You're in my prayers.
Sandyst


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
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SandySt. #101943 08-20-2009 05:22 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Sandy, thank you for your kindness. I appreciate it very much. Its been a long road for me. Every time I think Im better, I get it again. Three years in a row really stinks. This time I dont feel too bad, sore jaw and sometimes a little tired. I couldnt believe it when my doc told me Im stage 4 cuz its in the jaw bone.

For me, its easier to help other people with their issues. My experiences can help lots of other patients. I dont like to think too much about what I have to overcome for the next few months. I get too scared when I think too much.

Brian has created a web site that allows us to all lean on each other in our times of need. Even the strongest here need a hand sometimes. OCF members develop deep, long lasting friendships that only we can understand.

Thank you Sandy for your prayers and well wishes.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #101952 08-20-2009 06:49 PM
Joined: Aug 2008
Posts: 96
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Aug 2008
Posts: 96
Dear Christine,
You said it! You are my friend and I am thinking of you often. Please use us to lean on when needed, as you are so often there for others.
Take care,
Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
lorileona #101983 08-21-2009 07:04 AM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
Hey Christine
For you, I make an exception and totally advocate "positive". (and my distaste for that term is when it is "mandatory" or as more often happens - really "Pollyanna" )
Don't be alarmed by the moon face thread as I think that unfortunate soul's multiple organ transplants was a major factor in his lymphatic system giving up, My experience with complicated surgery requiring tag team surgeons and going for ten hours is that getting a neck dissection thrown in was almost a freebie. You are in the hospital long enough for them to monitor the drains and have then taken out as opposed to being sent home with them in and you need to worry about them as often happens with a neck dissection alone
So POSITIVE thoughts and best wishes. Eat up a storm this weekend and if your PEG is in, do some wine. Works for me
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #101991 08-21-2009 12:12 PM
Joined: Jan 2009
Posts: 253
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: Jan 2009
Posts: 253
Charm:
I wanted to rib you a little bit. You're such a sensitive guy!
Luv Ya
Sandy


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter

SandySt. #102000 08-21-2009 03:04 PM
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
No problem Sandy I did give you a hard time when you correctly predicted you would sail right through this. It's actually good for the new OCF posters to hear that the worst does not always happen. And you were and remain gracious about it all, instead of ascribing your "sailing" to some special character trait or magical supplement. Keep up the positive. OCF has plenty of room for yin & yang.
Although I see my doncha just hate it has inspired Donna wink
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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