| | Joined: Apr 2007 Posts: 37 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 37 | Hi everybody I'm back on the site ,i have been very selfish the past couple of years enjoying myself going yippee cancer free , but about 6 weeks ago i noticed a lump in my neck ,and yes it feel just like 2 years ago ,but with a extra dull ache ,of i go to the consultant who said of you go for a ct scan which i had last Monday ,i now have to wait till next Tuesday for the results ,its the waiting that's the worse ,is there any truth in you have a feeling that you know when its come back , oh well i should know next Tuesday , just like to say THIS SITE IS THE BEST , and a special hello to cookey how you doing long time no email , will keep you posted ,Allan
age 52 heavy drinker and heavy smoker stage 111 squamous cell at base of tongue trying to give them all up ,8 lot of cetuximab and 35 lots of radiation , gave up smoking at the start of treatment. only drink now in moderation
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I am scared every time I get a find a new lump and I, in an attempt to prepare myself for the worse then if the news is good - enjoy the best, am SURE it is back. Turns out I have only been right once out of many lumps and biopsies. I think I am about 1/15? I'm obviously not very good at guessing- and that is what you are doing - GUESSING. You will not know until the results, and as many have said - it isn't cancer until the doctors say it IS cancer.
Try not to be like me. Cancer steals far too much of our lives - don't let this thief steal these waiting days too. It doesn't deserve them. Put the test out of your mind and take a cancer vacation until your test results day!
Go out and enjoy today - NOW is all any of us have.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Apr 2007 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 37 | hi Donna that's whats so good about this site a reply straight and you have cheered me up already this is only my first lump in 2 years cancer free i thought the worst straight but i am only a man ,thanks love Allan
age 52 heavy drinker and heavy smoker stage 111 squamous cell at base of tongue trying to give them all up ,8 lot of cetuximab and 35 lots of radiation , gave up smoking at the start of treatment. only drink now in moderation
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey you
long time no hear.Its lovely to see you back but of course i wish it had been to post your two years post tx clear.still you were and i expect still are just like rob,awkward and contrary so it wasn't that likely was it?Lets not get ahead of ourselves here shep what does Debs think?Just try to chill until tuesday and if you fancy a rant honey the e-mail address hasn't changed.
love to you both
liz xxx
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | hi Allan,
remember..it's nothing until they tell you otherwise!
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Good luck for tomorrow shep.I have evrything crossed for you.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | I see you lurking whats the news? xxx
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Apr 2007 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 37 | Hi had the results today the good news is they can not even see the lump in my neck as it is so small ,that's men for you we always exaggerate on size ,the bad news is that the scan showed a tumor near my heart tucked nicely behind it in a awkward place so that they cannot get to it to get a biopsy as yet ,they say that they find it difficult to believe that it has come from my throat (that's a relief) but as yet they dont know the primary source so i have to go for a full scan in a few weeks ,what they want to know is what kind of cancer it is then we talk about treatment or maybe in a few weeks the tumor is big enough to have pushed other organs out the way so they can do a biopsy ,so i am waiting ,will i have to join another forum if its not connected to my throat is one of my worries ,but on the bright side at the moment my throat appears to be cancer free ,see oral cancer can be cured , lots of love to everyone for all there support , Allan
age 52 heavy drinker and heavy smoker stage 111 squamous cell at base of tongue trying to give them all up ,8 lot of cetuximab and 35 lots of radiation , gave up smoking at the start of treatment. only drink now in moderation
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Oh Allan
i am going to put emotion aside here and be a factual.The facts are they cannot know if this tumour is related to your throat until they can biopsy the tissue and identify what type it is. It is possible it is a secondary from the throat or is their a possibility your first tumour wasn't a primary?
Next why the hell do you have to wait a few weeks? Surely this is urgent and the scan needs doing ASAP.Oh shit Allan!!!!
I can't speak for any one else but i dont see any reason for you to leave this forum as you will always be an oral cancer patient/survivor so i for one hope you will stay with us and let us know as soon as you have any news.
all my love to you and debs
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Apr 2007 Posts: 37 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 37 | Hi thanks for your concern ,they are going to wait and do a full body scan because they think it is from some where else ,ie down below possible pancreas also it will give some time to see if the tumor gets any bigger so they can take a biopsy from that because there is a chance that there is no primary and it has come from my neck ,the good news is there is no sign of cancer from this tumor upwards ,so i am going to go wild till the merry go round starts again (i went to the pub for early doors tonight keep it quiet ) i will keep you informed of the progress ,the cancer that is not the going wild , love Allan
age 52 heavy drinker and heavy smoker stage 111 squamous cell at base of tongue trying to give them all up ,8 lot of cetuximab and 35 lots of radiation , gave up smoking at the start of treatment. only drink now in moderation
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