| | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2009 Posts: 114 | Does this hurt others teeth. When I put on my trays with the Dry Mouth gel provided by my dentist my teeth explode in what seems like sugar and cold sensitivity. It just gets worse and worse the longer I keep them in and I am only lasting about 5 minutes.
Has anyone experienced this. My teeth got sensitive after surgery and while taking roxicet liquid pain killer.
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Talk to your dentist. I have been using the Fluoride trays for 3 years now and never experienced anything like you describe and I keep my on for 30 mins every day.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | Oooh, glad David is a fluoride trays expert!
I stopped using them once my mucosa got too ravaged by radiation. It still stings a bit when I use them, so I try every so often, and if it hurts, I put it away and try again in a week or two. So far stil stings. Should I suck it up and do it, or should I wait until it don't hurt no mo'?
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 114 | Relief! Relief with a Capitol R!!!! SF 1.1% Gel made by Cypress Pharmaceutical, Inc. Described as a brush on and leave for up to thirty minutes. It has no sugar or sugar imitators and I can slather my teeth in full trays of this stuff and actually forget they are in my mouth. I almost want to do it again...... 
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | Jenka,
Check with your Cancer Center's dental group, but during TX and Recovery I was told if my mouth got to sore to use the trays to just rub the fluoride on with my finger or a soft baby toothbrush.
I found I prefer the sodium fluoride to the stannous fluoride.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | hiswhatever,
That's what I use now as it's much cheaper than what my dentist was "giving" me. I think I pay $12 a tube and the other was costing $23.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2009 Posts: 11 Member | | Member
Joined: Jan 2009 Posts: 11 | David,
Could you tell me me what kind of flouride you use and how you use it? I've just been putting in general 1 size fits all trays for 2 min a day and then don't rinse mouth for 30 min. I've not gotten good advice on this so was just following instructions on bottle. Should I keep them in my mouth for 30min?
Thank you!
Kristen
26 yo Med student: 9/26/08- biopsy diagnose SCC on rt side of tongue
10/08/08- partial glossectomy and rt sided neck dissection removing 42 nodes, one of which positive for SCC
11/10/08- 7 wks of 33x IMRT, wkly cisplatin and wkly erbitux tx
12/26/08- last day of radiation.
8/5/09- uh oh...
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Kristen,
I use SF 1.1% Gel made by Cypress Pharmaceutical, Inc. Cost $12.00 a tube at Walgreens and I squeeze a thin ribbon of gel into the trays and put them on right after I floss and brush my teeth right before I retire. I was told by my dentist to wear them for 5 minutes and not drink anything for 30 but I decided just to keep them in the entire 30 and then I take them out and clean them and wrap them loosely in a tissue so the will dry and I also have to be sure to put them in a drawer so any one of my 7 cats don't steal them and run all over the house with them during the night. I should know because I left them alone one night and played hell the next day finding them and they were chewed and bent almost beyond recognition.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2009 Posts: 114 | Just an add, my CCC dentist said I should leave them in for 15 minutes.
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | | Joined: Jan 2009 Posts: 11 Member | | Member
Joined: Jan 2009 Posts: 11 | Thank you David and Hisnibs. I'll look into this! Started last night for 10 min. Still painful to my sensitive tongue but worth it.
26 yo Med student: 9/26/08- biopsy diagnose SCC on rt side of tongue
10/08/08- partial glossectomy and rt sided neck dissection removing 42 nodes, one of which positive for SCC
11/10/08- 7 wks of 33x IMRT, wkly cisplatin and wkly erbitux tx
12/26/08- last day of radiation.
8/5/09- uh oh...
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