| | Joined: Apr 2009 Posts: 104 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Apr 2009 Posts: 104 | Thinking good thoughts for you, Christine. You're always so encouraging and supportive on this site.
Thanks!
(Gretchen, on Facebook)
GM, for John who has SCC Rt tonsil with 3+ nodes, Stage T1 N2b MX; surgery 04/09; Rad X 33 completed 7/14/09...f/u imaging and scopes looking good as of Feb 2011
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im scheduled for the test results with my ENT on Aug 11. Next is the plastic surgeon on Aug 13. Then pre-admission testing and the PEG docs on Aug 18. Another consult with my ENT on Aug 20th. Thats the one where I will decide if I will go thru with this operation. My biggest concern is the quality of life after all of this is over. I know the recovery will be a long one. After all the consults with all my docs and the test results are in thats when I can make an informed decision as to my treatment. This will sound awful....Im sorry....I cant keep doing this every single year. Three years in a row Ive been sick. Its been a never ending cycle for me. Everytime I think Im better and start feeling good, I get this terrible disease again. I wont go thru another round of this, or more surgeries. I want to enjoy my life, not constantly be in a recovery mode. My countdown begins, 25 days of my current life left. After my surgery, my life will be permantly altered. Really hoping and praying that it will be the end of cancer for me. Dont anybody get the wrong idea, I am not depressed. I am a realist, I see the situation exactly how it is. Hope everyone has a great day!!!! Im going to make it the best day possible  I appreciate everyones support, it is a great comfort to me. THANKS!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | You are such a strong lady and I know you will make the best decision based on the facts. I'm sure you have every confidence in your doctors. Keep us posted.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Christine,
I know that other people's problems are easy to fix but please don't give in to this cancer. You have fought it strong and I hope you continue to fight it just as hard.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Christine,
I am away on vacaion and haven't been here for a few days. Why so long for the results?
No one will question your decisions. You are one of the strongest willed people I know.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Christine,
You don't sound depressed, and I like your attitude. It's important to not have your head in the sand. I know you will still fight this with everything you have. I don't think anyone blames you for not wanting to always be in treatment/recovery mode. I'm always thinking of you.
xoxo
(((((HUGS))))))
Last edited by suzanne98; 07-30-2009 04:45 PM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Christine, LOL why is it we have so many appts the same day? I have one the 11th with my Oncologist
. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2006 Posts: 388 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 388 | Christine, you have an army all around you ... and OCF army ... and we're hoping your docs have the big guns! Wishing a lovely lady a huge turn-around in your battle. Hugs, JaneP
Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | Recovery Mode is a lot better than Hospice Mode!! Hang in there!
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Christine,
You are one of the strongest and most caring people on this forum. I am keeping you in my thoughts and prayers that this WILL BE the LAST time you have to deal with this. I also don't blame you for looking at this realistically - I've never been in your shoes but believe I would be the same. Hang in there and BE POSITIVE.
Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
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