My husband's PEG install was also very painful. We were told that it was because he was in such good shape that the installation cut through a lot of muscle. It was better after about a week. It also got him very depressed because it brought the whole experience out of 'just his mouth area' to his entire body.
It was a lifesaver during the radiation/chemo though- and he is back on it now following surgery a week ago.


J
partner to Peter diagnosed Jan 5 w/ spindle cell carcinoma
induction chemo, chemo/ radiation x 35. Tumor non responsive
Surgery July 09