thanks Dana. Sounds like it's going to be a truly trying time. It's hard already and I expect it will get harder before getting easier as you've said. We will hang in there. I just expected the mucous to start after radiation had begun, not before. So my well planned things to expect list went out the window and I panicked. Just wondering also, does the pain from the tumour reduce as radiation progresses or does he have to deal with that pain as well as the side effects? Thanks again for your help.


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.