Platinum Member (300+ posts) Joined: Jun 2009 Posts: 440 | Saagar, Just wanted to let you know that I know very well what you are going through with the disgnosis of this rare form of cancer. I recommend getting several opinions as far as treatment and then choose whats best for you. I am actually typing from my hospital bed as I just had surgery on the 30th of June to remove my MEC. I wish you the best in this upcoming journey!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0 Elizabeth, 33, mother of 3 girls (4,7, &8yrs old) 3 rds of chemo(Carbo/Taxol) Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube. 30 rds of rads with weekly cisplatin SCANS ALL CLEAR! OCF Regional Coordinator of San Antonio Walk
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