Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Saagar,
As you learn more and read more and talk to posters more, keep a pad handy and write down every question that pops into your head. Take this with you every visit and ask them all until you get answers.
Don't be concerned about %'s of this or that IMO.
Ask about your Tx options and what he/she recommends.
Ask about the side effects of any Tx.
Ask if there is anything recommended for you to do before your Tx starts, like dental work, fluoride trays, hearing tests, etc.
Ask about PEG's and Ports.
Ask about how many similar patients they treat a year. Ask if they can contact you about their experiences.
Don't feel that you are limited to one opinion. I got 5 and believe me I'm so glad I did. I ended up at a CCC and I firmly believe I turned out far far better than had I stopped at anytime before them.
Before you go review your questions with us. After you go, review the answers with us.
Partnering with this site will be the best non medical thing you can do for yourself.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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