 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Well I do wish to alarm you because if one cancer cell escapes the nodal system then it is far far worst than where it is right now. Three years ago my CCC doctors told me that if my cancer spread beyond my nodes it would likely either go to my brain or my lungs and it both locations the prognoses would not be good. This is your life and you need to start making some noise here. I would call a CCC near you and get things moving at a faster pace and it never hurts IMO to get another opinion especially from a CCC. http://www.oralcancerfoundation.org/resources/cancer_centers.htm
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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