My mother is 84. She was diagnosed with Celiac Disease in the early 1960's and has led a gluten-free life since then. Last year she was diagnosed with oral cancer and underwent chemo and radiation, finishing both in May. She was on a g-tube until July.
Eating and drinking have remained a huge issue for my mother. She suffers from a dry sore mouth, lack of taste, no appetite and difficulty swallowing. Food is often repulsive to her. Between these issues and the limited gluten free diet she must maintain it is very hard for her to get the nutrition, fluid and calories she needs.
The nutritionist at our local hospital has not been very helpful. She had a swallow study done and then her esophogus widened, but saw little improvement.
She adamently refuses to consider another feeding tube, and I feel like we are running out of options. Does anyone have experience with oral cancer and Celiac Disease? Can anyone offer any advise? Thank you for any help you can offer.