Liz,
Did you find the macmillan nurse helpful? We had one assigned to us and I sent her away! She was horrible! The day after the operation she told Martin to get on with it and accept he had cancer and he might die and be prepared! I know it is good to be truthful but that was pushing it! He was half hallucinating on morphine and still in shock from the whole operation. I sent her away :" We can deal with this ourselves thank you" I said "we don't need you to say he is going to die, the surgeons certainly haven't said that!". I was horrified! She was also rubbish with his palleative care, she kept changing his pills when he kept saying no, I am comfortable with what I am on now (then the pain would come back). Maybe she was having a bad week, but she wasn't nice at all, or helpful.
Cecilia