There are major issues being researched at the moment regarding post TX "abandonment".I found this time to be the very worst to cope with.For weeks you have a military regime and your life is full of hospitals ,doctors radiotherapy technicians,nutritionists,cancer nurse specialists and all the sundry care that goes with this giant safety net.Then one day you wake up and the tx is over,and you have no hospital visits for six weeks,no doctors appointments,no advice on what happens next and it feels like a bereavement.Your own family doctor may not be very familiar with this particular type of cancer,your partner may be sleeping 18 hours a day,choking on mucous,totally unable to speak or take nutrition by mouth,burnt to a crisp and in constant pain,and all you can do is flounder from day to day.

Without OCF i think i would have gone seriously loopy,and its wrong.To cope as a carer i needed a strict schedule to follow and this cutting of the umbelical cord was traumatic to say the least.

In the Uk macmillan Cancer support are running with this problem and doing very detailed research into the needs of the lost souls in the post tx period,until then all i can advise is come here every day and post your problems and your feelings,and slowly things should turn around

good luck to you both.

liz