 Platinum Member (300+ posts)
Joined: Apr 2009 Posts: 329 | We all have different opinions on what doctor to see, we've all been treated differently. The experience I had with the ENT Surgeon I would have had unnecessary radiation (with a PEG) and who knows where I would be today. I agree with David and Bob, CCC.... I drive 3 hours to a CCC in Tampa, I'd drive double that to go to a CCC after the experience I had here with the ENT Surgeon. I was clueless about CCC I'm so glad a Radiation Oncologist helped me I owe him big time.
Right now your mind is all over the place, I know been there like everyone else here. Take notes and ask questions don't be afraid to ask this is your life. Take someone with you to your appointments. Four ears are better than 2 and you won't hear half of what the doctor's tell you. I know I asked my friend, what did he say it went right over my head I was in a daze. I went through this with my late husband 10 years ago BOT cancer Stage IV. We didn't know about CCC no one told us or we would have been there.
This is the place for you to be a lot of support Good Luck and God Bless.
Connie
SCC. of the left lateral tongue, anterior two thirds, T1 possibly a T2.
Left partial glossectomy, left selective neck dissection 4/21/09. Nodes clean, No Rad, No Chemo.
CT Scan 9/11 clean, CT Scan 9/12 clean
Moffitt Cancer Center in Tampa, FL. A+.
My hometown Lockport, NY.
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