 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Jim,
My RO was/is Trotti and I know him well. He even invites me to co teach a N & N seminar at Moffitt once a year with him and we correspond often. He is one great Dr and I am very happy that you have him guiding your ship from now on. Karen, his nurse, is a real talker and loves to laugh. Moffitt is a great center as well. I love the place and anytime you want company, PM me and I'll go with you. Mention my name to Trotti and Karen and maybe he'll give you some extra radiation. lol Are you seeing anyone else at Moffitt?
Re the Peg, I also didn't get one and this site discusses this topic often. Trotti didn't push me but believe me there was a time when I could have used it and by that time we, the patients, are to sick and weak, etc to have the Peg installed. Discuss this with Trotti.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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